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Long COVID Severe → no benefitIll for 6 years

Long COVID fatigue and legs giving way; physical therapy made it worse

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill for
6 years
Last post
Feb 2026
In their words
  • Condition: Long COVIDIve been struggling with long bouts of fatigue (days or weeks long) after exercise since I got covid in 2020. In context ↗
  • At worst: SevereI can still barely sit up to eat and use the bathroom. In context ↗
  • Now: No benefitthe physical therapy seems to be making my fatigue so much worse In context ↗
  • Began after: COVIDsince I got covid in 2020
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

They had long bouts of fatigue lasting days or weeks after exercise since a COVID-19 infection in 2020, with no diagnosis. In early 2026 their legs stopped holding them up and they began physical therapy, which made the fatigue much worse: they could do the exercises in sessions but then felt run over by a truck for days. After stopping for over a week they could still barely sit up to eat or use the bathroom.

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What they tried

Their words about each treatment
  • physical therapy · Much worseI can physically do the exercises in the session, but then I feel like I've been run over by a truck for days. ... I havent done them at all for over 7 days now, and I can still barely sit up to eat and use the bathroom.

Their path

Very severeSevereModerateMildNear normalRecovered6 y6 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 6 years after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
2020COVID-19 infection, then long bouts of fatigue after exerciseIve been struggling with long bouts of fatigue (days or weeks long) after exercise since I got covid in 2020. In context ↗Not stated
early 2026legs stopped holding them up; started physical therapyRecently my legs stopped holding me up and I started physical therapy. In context ↗Moderate
2026-02-18physical therapy made fatigue much worse, floored for days after each sessionthe physical therapy seems to be making my fatigue so much worse. I can physically do the exercises in the session, but then I feel like I've been run over by a truck for days. In context ↗Severe
2026-02-19a week after stopping the exercises still barely able to sit upI havent done them at all for over 7 days now, and I can still barely sit up to eat and use the bathroom. In context ↗Severe

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiselong bouts of fatigue (days or weeks long) after exercise In context ↗
  • Muscle weaknessmy legs stopped holding me up In context ↗

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