Story
ME/CFS
No benefit
Very severe Independent (blog, forum, news)
BreathlessnessHeart symptoms & palpitationsMast cell (MCAS) & allergiesPain & fibromyalgia none
ME/CFS · Very severe · forums.phoenixrising.me · Jul 2016
ME/CFS
Very severe → no benefit
Has anyone tried "GABA" supplement- need feedback!
- Condition
- ME/CFS
- At worst
- Very severe (bedbound, unable to do basic care)
- Ill for
- Not stated
- Published
- Jul 2016
Summary
GABA (Solgar brand, 500mg) was tried once at bedtime by a patient who uses a motorized wheelchair and carries positive anti-GAD65 antibodies affecting glutamate-to-GABA conversion. Duration of illness is not stated in the post. Rather than helping, the single dose kept her awake all night, and by morning she had worse breathing, shortness of breath, and chest pain just going to the bathroom in her wheelchair. She reported no allergic reaction but also no benefit. No further attempts or follow-up are mentioned in the thread.
Symptoms mentioned
Symptoms: Breathlessness, Heart symptoms & palpitations, Mast cell (MCAS) & allergies, Pain & fibromyalgia.
Side effects or harms mentioned
- Insomnia from treatment
Rather than helping, the single dose kept her awake all night, and by morning she had worse breathing, shortness of breath, and chest pain just going to the bathroom in her wheelchair.