How it went
Did it last?
- 7 of 34 said the benefit wore off (including the 2 who relapsed).
- 4 of 34 needed to keep up a treatment to stay well.
Read from what people wrote. A story that ends without a follow-up counts as lasting, so treat these as minimums.
| Outcome described | Accounts | Share |
|---|---|---|
| Full recovery | 8 | 24% |
| Near-full | 8 | 24% |
| Substantial | 8 | 24% |
| Partial | 6 | 18% |
| Relapsed | 2 | 6% |
| No benefit | 2 | 6% |
By how ill people were
| Severity at worst | How it went | n | Recovered |
|---|---|---|---|
| Moderate | 5 | 60% | |
| Severe | 16 | 56% | |
| Very severe | 6 | 67% |
7 accounts don’t say how ill the person was.
Who published these accounts
Right-hand number: share describing a full or near-full recovery. Pages that sell something, and advocacy sites, tend to publish only the successes.
What people with breathlessness tried
- TreatmentHow it wentRecoveredFaded
- Mestinon / pyridostigmine3 accounts
33% 0%
- Elimination and ketogenic diets3 accounts
0% 67%
- Sarno / TMS / somatic tracking / JournalSpeak3 accounts
100% 0%
Within the accounts on this page. Grey numbers rest on fewer than 10 accounts.
All 34 accounts
-
Three Long-term Long COVID Patients, Three Rapid Recoveries
Pemivibart (Pemgarda), a monoclonal antibody infusion whose effect the article says typically lasts about a couple of months, was given to three long-term long COVID patients. A 70-year-old woman, sick for nearly a year, had her brain fog, breathlessness and…
-
Supplementation with L-Arginine + Vitamin C has beneficial effects
L-citrulline powder, 3g per dose with 90mg of vitamin C powder, taken twice daily, was credited by searcher1 with resolving her long COVID symptoms. She had been ill with fatigue, breathing problems, muscle aches and brain fog since September 2022. After…
-
It was a great revelation and relief to discover that I had the power to heal myself
Began following Nicole Sachs' free "Healing Yourself" videos and her paid "Freedom from Chronic Pain" course, alongside Dr Howard Schubiner's "Unlearn Your Pain" resources, substituting "pain" for "symptoms" as he worked through them from late October 2022,…
-
Gary
Gary's recovery is credited to Nicole Sachs' free YouTube series "Healing Yourself" (Parts 1-4) followed by her paid course Freedom from Chronic Pain, plus Dr. Howard Schubiner's mind-body material at unlearnyourpain.com, applying pain-reprocessing…
-
Impact of extended-course Paxlovid in established Long COVID (Case 7)
Case 7, a 29-year-old man about 10 months into Long COVID/ME since July 2022 with extreme fatigue, PEM, tachycardia, POTS, persistent headache, brain fog, chest pain and shortness of breath, took a 15-day extended Paxlovid course in May 2023 while also on…
-
Healing from Long Covid with water fasting
Eleven months into Long COVID with chest pain, breathlessness, anxiety and depression, Luke did a 28-day water-only fast built around three short dry-fasting stretches of 36, 60 and 84 hours roughly a week apart. Fatigue and brain fog cleared within the…
-
Healing from Long Covid with water fasting
About a month after a severe bout of COVID that left her hypoxic (93% oxygen saturation), with high blood pressure, fatty liver and high insulin, Michelle began a water fast intended to run 21 days, with some dry-fasting stretches, under a coach's guidance.…
-
My 4th Year; EBV, ME/CFS, Long Covid; Pacing, HBOT, Vedicinals
Vedicinals-9, taken short-term as a nutraceutical supplement alongside an organic diet. She had been ill for four years at the time of writing, with EBV-triggered ME/CFS overlapping long COVID, managing dysautonomia with pyridostigmine and midodrine plus…
-
Chrissy Zmijewski
This page names no specific program, drug, dose, or therapy for her personally; it is a short video-introduction page that frames her recovery within the site's general mind-body approach and points readers to a fuller account on an external blog. She is…
-
I realized there was nothing spectacularly wrong with my body. My fear of never getting better had kept me from getting better!
Esther's breakthrough came after hearing a podcast featuring psychotherapist Nicole Sachs and "Lieke from Amsterdam," which led her to journal about her emotions and read books by Dr. Sarno and Nicole Sachs, following roughly eight months of illness that…
-
Paul Garner
At seven months post-infection he was connected with a Norwegian psychology PhD candidate who had recovered from post-viral fatigue and taught him that unconscious defence mechanisms were generating false fatigue alarms, and that he could retrain his bodily…
-
Has Bruce Patterson Cracked Long COVID?
Sam started Bruce Patterson's long-COVID treatment protocol, though the specific drugs are not named in the comment, after 17 months of illness marked by shortness of breath, rashes, an elevated heart rate and POTS symptoms. The first four to five days were…
-
Some Patients Are Reporting Recovery from Long COVID (Sherri)
Sherri Klipowicz used a plant-heavy, low-gluten, low-dairy diet, restorative yoga, magnesium and glutathione supplements, and ozone therapy, and worked with an insomnia specialist to fix her sleep. She had been sick with Long COVID since March 2020, and…
-
Mysterious Ailment, Mysterious Relief: Vaccines Help Some COVID Long-Haulers
The Pfizer COVID-19 vaccine, two doses, is credited with turning around long COVID that had lasted nearly a year. Before vaccination she had headaches, shortness of breath, extreme fatigue and loss of smell, and said she felt like she had aged 20 years. A…
-
3-month IVIG experience
Did two years of IVIG (July 2016 to July 2018) at 82g per infusion cycle, run at a very slow infusion speed of 40 ("but it was the fastest that I could tolerate"), for autoimmunity, MCAS and dysautonomia that included years of muscle weakness and breathing…
-
Jennifer Brea's Amazing ME/CFS Recovering Story: the Spinal Series Pt II
Jennifer Brea, the Unrest filmmaker, had been wheelchair-dependent for nearly all of her eight-year illness, at her lowest with breathing difficulties, flaccid limbs, numbness and speech problems. About six months before this post she underwent spinal…
-
Jennifer Brea's Chronic Fatigue (ME/CFS) Recovering Story
Underwent spinal surgeries over several weeks to correct craniocervical instability (CCI) and tethered cord syndrome, wore a neck collar (Philadelphia or Aspen Vista) during recovery, and found the drug Mestinon (pyridostigmine) helpful for symptoms. She had…
-
The illness experience, and the tools I learnt, made me an Olympic athlete
Recovered through a three-day Lightning Process course in December 2009 with her father, taught by two newly licensed instructors from the new Norwegian company Aktiv Prosess, after nothing else had helped — not a GP who told her to exercise through the…
-
It is awfully demanding when you are seriously ill, but it is well worth the effort!
Took a Lightning Process course in November after seven years of ME/CFS, having initially been advised against it by the ME association. Before the course she was bedridden and able to walk only a few meters, with breathing difficulty, muscle weakness,…
-
ME/CFS, Valcyte, and me: Third time lucky
Tracy has tried valganciclovir (Valcyte) three times for ME/CFS: a six-month course in 2014 (three weeks of induction at two 450mg pills twice daily, then two pills once daily) cut short by an allergic reaction after switching to a generic mid-course; a…
-
Chaga Tea, dramatic but temporary
Drank very strongly brewed chaga mushroom tea for ME/CFS marked by muscle pain, air hunger, shortness of breath and, at its worst, "intense trouble even forming a thought." Reports "significant (above placebo) relief" from the muscle pain, air hunger and…
-
First time in remission with ketogenic diet
After 10 months on a ketogenic diet, reports a "much better state of health" than on a prior Paleo diet, with less PEM, no air hunger, and better coordination and balance. Describes about 10% more energy overall, with the gain holding rather than fading over…
-
First time in remission with ketogenic diet
After more than a year on a ketogenic diet, reports a "very significant improvement" in ME/CFS symptoms: reduced PEM, eliminated air hunger, better coordination and balance, and about 10% more energy and mental clarity. Notes the benefit "tailed off a…
-
Does Valtrex work this fast?
Only three days into Valtrex 500mg twice daily, reports "I noticed some improvements": neck spasms "milder," neck lymph channels "congested less," and air hunger "less severe and less frequent." Explicitly early and hedged - the thread title itself questions…
-
Mestinon + Famvir - whoa!
After a severe EBV flare in February 2017 that made cardiac symptoms - low blood pressure, low heart rate, shortness of breath, "heart palpitations like mad" - much worse on top of 5 years of CFS, started Famvir (titrated up to 500mg twice daily), added…
-
Has anyone tried "GABA" supplement- need feedback!
GABA (Solgar brand, 500mg) was tried once at bedtime by a patient who uses a motorized wheelchair and carries positive anti-GAD65 antibodies affecting glutamate-to-GABA conversion. Duration of illness is not stated in the post. Rather than helping, the…
-
Renewal and Relapse: An Anti-inflammatory Chronic Fatigue Syndrome Story
Diclofenac was taken as a 75 mg slow-release tablet, later increased to twice daily, after 32 years of living with ME. Both pain and fatigue improved substantially and he felt he had essentially recovered while on it. After an unspecified period the effect…
-
Spiritual Experience Changes Matt's Life
Matt developed chronic fatigue syndrome after a viral illness in the mid-1990s and by 1998 was severely disabled with fatigue, dizziness, breathing difficulty, muscle pain, night sweats and brain fog that forced him to stop working. He states supplements and…
-
Rambler's Mold Avoidance Experiments
After needing stimulants just to leave his moldy San Francisco house for four years, strict mold avoidance for about two weeks brought sleeping through the night, less brain fog, clearer vision, more morning energy and almost no tingling in his hands and…
-
My Air Hunger has improved dramatically !!
Adopting the same betaine HCl/digestive enzyme/probiotic combination as the thread starter, he says it "basically cured my air hunger," calling it a "MIRACLE," though he still sometimes needs a few deep breaths. Presented as a large, sustained gain while…
-
My Air Hunger has improved dramatically !!
Betaine HCl, digestive enzymes and a high-CFU probiotic taken around meals brought an estimated "60-70%" improvement in breathing capacity and a big rebound in appetite, easing air hunger she calls "devastating" and "distressing." Presented as an ongoing…
-
My Valcyte pilgrimage
Eighteen years into illness and previously bedbound, unable to sustain even a five-minute conversation and enduring daily headaches at 7-8/10 severity for up to 15 hours a day, reported that after 18 months on Valcyte they could take frequent 30-45 minute…
-
Ivermectin Lifts a Woman to the Summit
Ivermectin as a 1% topical cream, applied in increasing amounts up to three times daily, was used after about four years of severe long COVID following a 2022 Delta infection. Baseline symptoms included crushing fatigue, exertional breathlessness, chest pain…
-
Fasting
GrammaLinda, who has ME/CFS along with low blood pressure and atrial fibrillation, did several shorter fasts of 20-36 hours and set out on a planned six-week fasting trial. Instead she developed an erratic heart rhythm, a return of her atrial fibrillation…