ME/CFS
Outcome unclearIll for 8 months
ME/CFS fatigue and migraines, unable to work, tried pacing and a power chair
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- 8 months
- Last post
- Sep 2026
In their words
- Condition: ME/CFS
My GP suspects ME/CFS. I agree that's what it seems most likely to be.
In context ↗
Read from 11 of their posts and comments; links to the 10 this page draws on
Summary
A UK mother of six-year-old twins whose fatigue and migraines worsened sharply in January 2026, leaving her unable to work and crashing after outings. While waiting for an NHS chronic fatigue appointment, she learned to pace and break up chores, and by July 2026 felt she had improved, though she still had weeks barely out of bed. In August she got a power chair, which she loves.
Ask Miruvor AI
What they tried
Also tried
Their words about each treatment
- my drugs · Helped
Normally my drugs are changed and then the fatigue subsides. However recently my labs have been good but the fatigue has been awful.
In context ↗ - pacing · Helped
I am learning how to pace myself more and more.
In context ↗ - power chair · Helped
it has given me so much already! It's a total joy, I love it.
In context ↗ - sunglasses · Helped
I wear sunglasses when it's dull too and that helps.
In context ↗ - loop ear plugs · Not said
I have those loop ear plugs to reduce noise.
In context ↗ - active daydreaming · Not said
When I just need to lay still I active daydream.
In context ↗ - plant based diet · Not said
I have a very plant based diet.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were | After |
|---|---|---|---|
| January 2026 | symptoms got bad; stopped 6-hour hospital shiftssymptoms got bad in JanuaryIn context ↗ | Moderate | |
| April 2026 | in bed most of the day after outings; sleeping 1-4 hours in the day; not workingThen Tuesday boom - in bed most of the day. Only to get up because I had to get my children from school.In context ↗ | Moderate | |
| July 2026 | felt she had improved through acceptance and self-careI definitely have got better but it comes more from a place of acceptance and making sure I take care of myself better.In context ↗ | Moderate | Pacing and the energy envelope |
| September 2026 | still pacing, lymph nodes in groin flaring at timesMy lyphnodes on the right hand side of my groin often becomes inflamed at times for various reasonsIn context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Light & noise sensitivity
the wind and sun can trigger me
In context ↗ - Temperature regulation
I took struggle with the heat.
In context ↗