Miruvor
Sign up
ME/CFS Very severe → much better

At 2-3% capacity with ME/CFS, now much better and able to work at about 30% capacity

Condition
ME/CFS
At worst
Very severe (bedbound, unable to do basic care)
Ill before improving or writing
years
Last post
Apr 2022
In their words
  • Condition: ME/CFSI have a fairly mild version of chronic fatigue. In context ↗
  • At worst: Very severeOne year ago I was at like 2-3% of my capacity and it was hell In context ↗
  • Now: Much betternow I can work at about 30% of my capacity, and it is exhausting, but man do I feel free now compared do before, I can have a life In context ↗
Read from 2 of their posts and comments; links to the 2 this page draws on

Request to remove this story

Summary

Crocus 99760 has had chronic fatigue for years. About a year before April 2022 they were at 2-3% of their capacity and described that time as hell. By April 2022 they could work at about 30% of their capacity and called it a fairly mild version of chronic fatigue, feeling free compared with before. They had tried many diets and seen many doctors, and were sure food wasn't the problem.

Ask Miruvor AI

Asking aboutCrocus 99760’s story

What they tried

Also tried

many different diets· Not saidlifestyle changes· Not said
Their words about each treatment
  • many different diets · Not saidFood can't be the problem because I tried many different diets. In context ↗
  • lifestyle changes · Not saidI have changed my lifestyle many times, I have tried many things In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
—onset of chronic fatigue, years before 2022I have checked with many doctors, it's been years In context ↗Not stated
about April 2021lowest point, 2-3% of capacityOne year ago I was at like 2-3% of my capacity and it was hell In context ↗Very severe
2022-04-09able to work at about 30% of capacitynow I can work at about 30% of my capacity, and it is exhausting, but man do I feel free now compared do before, I can have a life In context ↗Moderate

Ask Miruvor AI

Asking aboutCrocus 99760’s story

A little hope, every Sunday

New recovery stories and data-driven research on ME/CFS and long COVID. Ideas worth considering, and the evidence behind them.

Free · Unsubscribe anytime