Severe long COVID, unable to walk 20 metres, now much better and walking a few kilometres
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 18 months
- Last post
- May 2024
In their words
- Condition: Long COVID
I was a runner and then got long COVID in Nov 2022
In context ↗ - At worst: Severe
I was severe and couldn’t walk 20 meters in February
In context ↗ - Now: Much better
Now I’m about 75- 80% recovered and can walk a few km a day with minimal discomfort
In context ↗ - Began after: COVID
got long COVID in Nov 2022
Summary
A runner who got long COVID in November 2022, they were severe by February 2023, unable to walk 20 metres, with heart rate reaching 140-165 on standing. Their POTS faded over 2023 and by January 2024 they were about 75-80% recovered, walking a few kilometres a day, though chest pain remained on hills. Severe insomnia was treated with mirtazapine and zopiclone from December 2022, and they came off zopiclone with CBT-I in January 2024, still taking mirtazapine.
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What they tried
Their words about each treatment
- mirtazapine · Helped
Over 2023, slowly I began to feel sleepy more and more just on the mirtazapine.
In context ↗ - zopiclone · Helped
7.5 mg zopiclone from Dec 2022 until January 2024 for sleep
In context ↗ - CBT course for insomnia · Helped
I did a CBT course for insomnia to help with sleep and get off the zopiclone. I
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 1 month after onset: the story doesn’t say how ill they were before that. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| November 2022 | Got long COVID; previously a distance runnerI was a runner and then got long COVID in Nov 2022In context ↗ | Not stated |
| November 2022 – February 2023 | At worst: heart rate 140-165 standing, couldn't walk 20 metresAt my worst in Nov/Dec 2022 my heart rate was jumping to 140-165 with standing ... I was severe and couldn’t walk 20 meters in February. | Severe |
| Summer 2023 | POTS fading, standing heart rate peaking around 110Through this past summer it was peaking around 110. Now it’s pretty much gone.In context ↗ | Not stated |
| January 2024 | About 75-80% recovered, walking a few km a day, chest pain on hillsNow I’m about 75- 80% recovered and can walk a few km a day with minimal discomfort.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Sleep problems
one of my worst symptoms was severe insomnia (I was sleeping one hour a night for a weeks)
In context ↗ - POTS & dysautonomia
Yes I had POTS and it slowly faded overtime, it’s gone now.
In context ↗ - Heart symptoms & palpitations
I still get chest pain if I try going uphill on walks
In context ↗