ME/CFS
Severe → somewhat better
Severe ME/CFS with house as whole world, only slightly better at times and still isolated
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- May 2024
In their words
- Condition: ME/CFS
after my final ME diagnosis
In context ↗ - At worst: Severe
the divorce kicked me back into ME severe
In context ↗ - Now: Somewhat better
Even when I get slightly better
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Eagle 15606 has ME and describes themself as severe, with their house being their whole world and staying away from social media and ME pages to survive. After their final ME diagnosis their husband tried to put them on the streets; the divorce, decided in their favour, kicked them back into severe ME. They mention only getting slightly better at times and remain isolated. Onset, illness duration and treatments are not described.
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Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | divorce after their final ME diagnosis kicked them back into severe MEthe divorce kicked me back into ME severeIn context ↗ | Severe |
| 2024-05-08 | still housebound, avoiding social media and ME pages to surviveThis house is my whole world. Literally.In context ↗ | Severe |