Sick with ME/CFS for years, somewhat better after retrying a medication
- Condition
- ME/CFS
- At worst
- Not stated
- Ill before improving or writing
- Not stated
- Last post
- Apr 2019
In their words
- Condition: ME/CFS
the only way that I can feel that I haven't taken it is if I go without for a few days in a row and am reminded of just how sick I was before I started it. Mind you, I'm still sick
In context ↗ - Now: Somewhat better
Mind you, I'm still sick, but it's made a tangible difference. More than anything else I've tried.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A Reddit user who had been sick tried a medication and had bad side effects after the first dose, so stopped after one night. Weeks later they retried; side effects were milder and faded over a week or two as they increased to 4.5 mg. After several years they still felt sick but reported a tangible difference, more than from anything else they had tried.
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What they tried
What they credit
Their words about each treatment
- Low-dose naltrexone · Helped
I persisted with it and the side effects eventually tapered off enough that I gradually increased it to the oft-recommended dose of 4.5mg where I have been for some years.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| before starting LDN | sick before starting LDNam reminded of just how sick I was before I started it.In context ↗ | |
| first LDN attempt | bad side effects after first LDN dose; stopped after one nightit was still bad enough to convince me to give it up after a single nightIn context ↗ | Low-dose naltrexone |
| some weeks later | retried LDN; side effects milder and fadedsome weeks later I tried again. It wasn't anywhere near as bad.In context ↗ | Low-dose naltrexone |
| 2019-04-09 | still sick but tangible difference from LDNI'm still sick, but it's made a tangible difference. More than anything else I've tried.In context ↗ | Low-dose naltrexone |
Adverse events
- Low-dose naltrexone“my initial experience wasn't quite like yours it was still bad enough to convince me to give it up after a single night” In context ↗ Side effects
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