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ME/CFS Somewhat better

ME/CFS fatigue, somewhat better after pacing and stopping overdoing it

Condition
ME/CFS
At worst
Not stated
Ill before improving or writing
Not stated
Last post
Jun 2013
In their words
  • Condition: ME/CFSPacing is a vital skill when it comes to fatigue ... From one spoonie to another In context ↗
  • Now: Somewhat betterMy energy levels and general happiness noticeably improved when I realised this a few months after my diagnosis. In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

Dew 48174 posted in r/cfs in June 2013 as 'one spoonie to another', describing pacing as a vital skill when it comes to fatigue. They said their energy levels and general happiness noticeably improved a few months after their diagnosis, once they stopped feeling guilt-tripped into doing anything excessive. They advised regular sleep and afternoon naps, and energy drinks only for short boosts.

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What they tried

Also tried

Regular sleep pattern and afternoon naps· HelpedEnergy drinks· HelpedNot feeling guilt-tripped into doing anything excessive for unsupportive people· HelpedPacing· Not said
Their words about each treatment
  • Pacing · Not saidPacing is a vital skill when it comes to fatigue. In context ↗
  • Regular sleep pattern and afternoon naps · Helpeda regular sleep pattern helps more in the long run In context ↗
  • Energy drinks · HelpedEnergy drinks are good for a short boost if it's *really* essential In context ↗
  • Not feeling guilt-tripped into doing anything excessive for unsupportive people · HelpedMy energy levels and general happiness noticeably improved when I realised this a few months after my diagnosis. In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happened
a few months after my diagnosisenergy levels and general happiness improved after stopping guilt-tripping themselves into doing too muchMy energy levels and general happiness noticeably improved when I realised this a few months after my diagnosis. In context ↗
2013-06-21still pacing, advising naps and a regular sleep patternFrom one spoonie to another: be kind to yourself and try to keep finding things which make you laugh. In context ↗

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