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ME/CFS Moderate → no benefit

Too fatigued to eat well with ME/CFS, weight loss and gut problems; no improvement

Condition
ME/CFS
At worst
Moderate (mostly housebound)
Ill for
Not stated
Last post
Oct 2026
In their words
  • At worst: Moderatea lot of us are often too fatigued to eat regular healthy meals In context ↗
  • Now: No benefitIt’s made it so that I can’t sleep. In context ↗
Read from 6 of their posts and comments; links to the 5 this page draws on

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Summary

A person with ME/CFS who was often too fatigued to eat regular healthy meals reported weight loss from malnutrition, and found that drinking milk helped limit further weight loss. Probiotics eased constipation but not other gut problems. By October 2026 traffic noise spiked their heart rate and kept them from sleeping; earplugs fell out and did not block enough noise, while over-ear earmuffs blocked most noise but were too uncomfortable to sleep in.

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What they tried

Also tried

Probiotics· HelpedTea· HelpedrTMS· HelpedMilk· HelpedEarplugs· No changeOver-the-head earmuffs· Not said
Their words about each treatment
  • Probiotics · HelpedProbiotics have helped me reduce constipation and loosening my stools. It has not been able to help me with any other gut problems though. In context ↗
  • Tea · HelpedA little bit of tea in the morning helps me a lot. In context ↗
  • rTMS · HelpedI did it pre illness and it helped. In context ↗
  • Milk · HelpedWhat has helped me so far is drinking milk. In context ↗
  • Over-the-head earmuffs · Not saidThey block out most of the noise but they are super uncomfortable to sleep in. In context ↗
  • Earplugs · No changeI tired earplugs but those fall out when I’m sleeping and don’t block out enough noise. In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happened
—ME/CFS began at some point after rTMS treatment taken while wellI did it pre illness and it helped. In context ↗
2026-10-03traffic noise spiking heart rate and preventing sleep; earplugs and earmuffs inadequateEvey time a car drives by, I feel my heart rate spick and my body tense up. It’s made it so that I can’t sleep. In context ↗

Symptoms mentioned

Their words about their symptoms
  • Gut problemsProbiotics have helped me reduce constipation and loosening my stools. It has not been able to help me with any other gut problems though. In context ↗
  • Light & noise sensitivityCan’t tolerate the noise of traffic ... I feel my heart rate spick and my body tense up In context ↗
  • Sleep problemsIt’s made it so that I can’t sleep. In context ↗
  • Anxiety & low moodI did it pre illness and it helped. In context ↗

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Asking aboutSandpiper 64695’s story

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