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ME/CFS Severe → somewhat better

Bedbound with ME/CFS throughout 2012, now somewhat better but not well enough to work

Condition
ME/CFS
At worst
Severe (mostly bedbound)
Ill before improving or writing
Not stated
Last post
Jul 2015
In their words
  • At worst: SevereThrough all of 2012 I was bedbound In context ↗
  • Now: Somewhat betterThis is actually an improvement from where I was. In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

Dove 92940 reported being bedbound throughout 2012 with recurrent infections about every two weeks, on top of CFS. By July 2015 they were no longer totally housebound or bedbound, but remained on disability and not well enough to work; routine physical or mental stress could still leave them housebound. They did not describe a treatment or say what caused the improvement.

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Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
2012Bedbound all year with recurrent infections about every two weeksThrough all of 2012 I was bedbound and suffering from some type of infection on average once every two weeks. In context ↗Severe
2015-07-15No longer totally housebound or bedbound; on disability and not able to workI'm not totally housebound or bedbound but I'm on disability and not well enough to work. ... This is actually an improvement from where I was. In context ↗Moderate

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseAn amount of physical or mental stress that most people would find routine is enough to cause a serious flare up for me where I am housebound. In context ↗

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