Vyvgart brought us back to life, but the Long COVID trial was canceled
- Condition
- Long COVID
- At worst
- Very severe (bedbound, unable to do basic care)
- Ill for
- Not stated
- Published
- Oct 2025
Summary
Roman White received weekly infusions of Vyvgart (efgartigimod) during the open-label phase of a Long COVID trial; no specific dose is given beyond the weekly infusion schedule. Previously a firefighter left unable to work, he improved dramatically on the drug, no longer meeting clinical criteria for POTS and feeling well enough to consider joining a gym. When the trial was canceled and infusions stopped, he suffered a full relapse, describing an "enormous impact" on his health and mental health that cost him a job offer paying $20,000 more per year.
What they credit
Credits POTS medication, Biologics & antibodies, Trauma & somatic work, Efgartigimod / Vyvgart.
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