Miruvor

Trauma & somatic work

107 people describe trying trauma & somatic work (77 with ME/CFS, 30 with long COVID).

59%
recovered fully or nearly
63 of 106
33%
improved (substantial or partial)
35 of 106
7%
relapsed
7 of 106
1%
no benefit
1 of 106

Out of the 106 accounts with a clear outcome; 1 more don’t say how it went.

How it went

Did it last?

  • 17 of 107 said the benefit wore off (including the 7 who relapsed).
  • 6 of 107 needed to keep doing it to stay well.

Read from what people wrote. A story that ends without a follow-up counts as lasting, so treat these as minimums.

Outcome describedAccountsShare
Full recovery5249%
Near-full1110%
Substantial2625%
Partial98%
Relapsed77%
No benefit11%
Outcome unclear1—

By how ill people were

Severity at worstHow it wentnRecovered
Moderate1258%
Severe6360%
Very severe2157%

11 accounts don’t say how ill the person was.

Who published these accounts

Sells a treatment or program44 accounts
77%
Recovery advocacy site13 accounts
85%
Independent (blog, forum, news)50 accounts
37%

41% of these accounts are on pages that sell this treatment or a program around it. Those pages publish their successes; compare the independent row.

Specific treatments in these accounts

Within the accounts on this page. Grey numbers rest on fewer than 10 accounts.

Side effects and harms people mentioned

Found by scanning the summaries for side-effect language, so this list is incomplete and may include a mention that isn’t about Trauma & somatic work itself. Read the story before drawing conclusions.

All 107 accounts

  • A Recovery Story: From Life-Altering Chronic Symptoms to Living a Full Life

    Full recovery ME/CFS Very severeIll 2 years livingproof.org.uk Jun 2026

    Credits trauma and somatic work, JournalSpeak, brain retraining and graded exercise. Steph was ill 2y with very-severe ME/CFS and is described as fully recovered. 90% bedbound; Sarno/JournalSpeak trauma journaling.

  • Six Things I Did NOT Do to Heal

    Substantial Long COVID SevereIll 2 years arielconn.substack.com · sells May 2026

    Credits trauma and somatic work and JournalSpeak. Ariel was ill 2y with severe long COVID and reports a substantial improvement. Rejected diets, supplements and GET; symptoms mostly gone.

  • 211: The Childhood Pattern Behind Slow ME/CFS Recovery - Teresa Hobbs

    Full recovery ME/CFS buzzsprout.com · sells Mar 2026

    Credits trauma therapy and nervous system. Teresa had ME/CFS and is described as fully recovered. Childhood-pattern/trauma framing.

  • 208: Bedbound With PPPD: Symptoms Became the Solution - Sam Miller's Recovery Story

    Full recovery Long COVID Severe buzzsprout.com · sells Feb 2026

    Credits somatic tracking. Sam had severe long COVID and is described as fully recovered. PPPD (dizziness disorder), not ME/CFS or long covid.

  • Some thoughts on exercise and long covid

    Full recovery Long COVID SevereIll 2 years arielconn.substack.com · sells Feb 2026

    Credits trauma and somatic work and somatic meditation. Ariel was ill 2y with severe long COVID and is described as fully recovered. Now runs faster than before the illness.

  • SGB for Long COVID with PTSD, Anxiety and Chronic Pain: case report

    Substantial Long COVID SevereIll 6 yearsEffect faded s4me.info 2026

    This 58-year-old chef received sequential bilateral stellate ganglion blocks, left side then right side a week later, in January 2023, with repeat right-sided blocks in December 2024 and September 2025; the injected medications and doses are not specified.…

  • 173: Resolving Grief and Trauma Cured My ME/CFS - Nurse Felicity Read's Story

    Full recovery ME/CFS buzzsprout.com · sells Oct 2025

    Credits trauma therapy and grief work. Felicity had ME/CFS and is described as fully recovered. She is a nurse.

  • Vyvgart brought us back to life (Mia)

    Relapsed Long COVID ModerateEffect faded thesicktimes.org Oct 2025

    Mia Delli Gatti took part in the same Vyvgart (efgartigimod) trial, though the article gives no specific dose or schedule for her. As a college student, Long COVID had previously left her unable to maintain a full course load, but on the drug she was able to…

  • Vyvgart brought us back to life, but the Long COVID trial was canceled

    Relapsed Long COVID Very severeEffect faded thesicktimes.org Oct 2025

    Roman White received weekly infusions of Vyvgart (efgartigimod) during the open-label phase of a Long COVID trial; no specific dose is given beyond the weekly infusion schedule. Previously a firefighter left unable to work, he improved dramatically on the…

  • RECOVER's 2nd Round of Long COVID Clinical Trials (SGB case 1)

    Substantial Long COVID SevereIll 2.5 years healthrising.org Oct 2025

    This young girl received a right-sided stellate ganglion block (SGB) followed by a left-sided block the next day, after long COVID had left her "flat on her back" and unable to form words clearly. Ten minutes after the first injection she sat up and looked…

  • Volker Stahl's Recovery Story

    Near-full Long COVID ModerateIll 1.5 years the-recovery-hub.org Aug 2025

    Managed long COVID mainly through pacing with a heart rate monitor, gentle yoga and light cycling, unspecified supplements, a COVID booster vaccination, and a psychological reframing approach inspired by Professor Paul Garner's published recovery account. He…

  • Hope Rooted in Biology: What Helped Us Recover from ME/CFS and Long Covid

    Full recovery ME/CFS SevereIll 5 years healwithliz.com · sells Jun 2025

    Credits CFS Health program and somatic. Lindsay was ill 5 years + 2 years recovering with severe ME/CFS and is described as fully recovered. Plus concussion; now works as ME/CFS coach.

  • Hope Rooted in Biology: What Helped Us Recover from ME/CFS and Long Covid

    Full recovery ME/CFS Moderate healwithliz.com · sells Jun 2025

    Credits Gupta Program, somatic and meditation. Heather was ill 35+ years with moderate ME/CFS and is described as fully recovered. Recovered 5+ yrs; works two jobs.

  • Hope Rooted in Biology: What Helped Us Recover from ME/CFS and Long Covid

    Full recovery ME/CFS ModerateIll 5 years healwithliz.com · sells Jun 2025

    Credits somatic tracking and emotional expression. Jake was ill 5 years with moderate ME/CFS and is described as fully recovered. Comorbid long covid and POTS.

  • Hope Rooted in Biology: What Helped Us Recover from ME/CFS and Long Covid

    Substantial ME/CFS SevereIll 6 years healwithliz.com · sells Jun 2025

    Credits brain retraining, somatic, TMS and trauma therapy. Sylvia was ill 6 years to improve with severe ME/CFS and reports a substantial improvement. Works part-time now, no restrictions.

  • Hope Rooted in Biology: What Helped Us Recover from ME/CFS and Long Covid

    Full recovery ME/CFS SevereIll 5 years healwithliz.com · sells Jun 2025

    Credits brain retraining, somatic and trauma therapy. Christine was ill 5 years (4 bedbound) with severe ME/CFS and is described as fully recovered. Comorbid POTS; recovered 2 yrs at writing.

  • Hope Rooted in Biology: What Helped Us Recover from ME/CFS and Long Covid

    Full recovery ME/CFS SevereIll 13 years healwithliz.com · sells Jun 2025

    Credits pacing, somatic tracking and yoga. Kate was ill 13 years with severe ME/CFS and is described as fully recovered. Roundup post profiling 20 people; entry 1 of 20.

  • A New Paradigm for Healing

    Substantial Long COVID SevereIll 4 yearsEffect faded harryboby.substack.com Jun 2025

    Credits trauma and somatic work, EMDR and somatic. Harry Boby was ill 4y with severe long COVID and reports a substantial improvement. Relapsed with brainstem pain after a meditation retreat.

  • Recovered from ME/CFS after 30 years

    Full recovery ME/CFS ModerateIll 30 years forums.phoenixrising.me · sells Jun 2025

    She credits Rebecca Tolin's online mind-body course Be Your Own Medicine, taken over about six months at age 70, teaching calming breath work, the physiological sigh, box breathing and Wim Hof breathing alongside emotional and somatic work. Crucially she had…

  • Radical Healing with Sara Southgate

    Full recovery ME/CFS Severe warriorwithin.substack.com · sells May 2025

    Credits trauma and somatic work, reflexology and reiki. Sara had severe ME/CFS and is described as fully recovered. Now coaches women professionally.

  • Mark Shares His Inspiring Long Covid Recovery Story

    Full recovery Long COVID SevereIll 2 years suzybolt.com · sells Apr 2025

    Credits pacing and trauma and somatic work. Mark was ill 2y with severe long COVID and is described as fully recovered. Primary-school teacher; now retraining as a play therapist.

  • Alisha's Recovery Story

    Full recovery Long COVID SevereIll 3 years positivelycovid.org Apr 2025

    Credits trauma and somatic work and brain retraining. Alisha was ill 3y with severe long COVID and is described as fully recovered. Couch-bound 1.5 years; now a paid TMS coach.

  • Mollie's ME/CFS and POTS Recovery Success with ANS REWIRE

    Full recovery ME/CFS SevereIll 5 years ansrewire.com · sells Jan 2025

    Credits brain retraining and trauma and somatic work. Mollie was ill 5y with severe ME/CFS and is described as fully recovered. Same story as the cfsunravelled family-psychotherapy post.

  • Buchinger fasting

    Substantial ME/CFS SevereIll 10 years forums.phoenixrising.me 2025

    Ten years into post-infectious ME/CFS so severe that cleaning their flat or studying was "unthinkable," ilivewithcfs ran themself through repeated unsupervised Buchinger-style fasts of about 200-250 kcal/day from juice and broth (later a 2-day prep, 7-day…

  • Why inactive ingredients can be a gamechanger

    Substantial Long COVID SevereEffect faded longcovidbegone.substack.com Oct 2024

    Christy's treatment here is CoQ10 (Qunol brand): she started with 50 mg gummies (though the bottle recommended 100 mg) last winter, then switched to a liquid "Superior Absorption" formulation that let her tolerate higher doses without side effects, which she…

  • Battling ME/CFS: a decade-long recovery

    Substantial ME/CFS SevereIll 10 years the-recovery-hub.org Aug 2024

    Credits NLP, EFT and diet. Amir was ill 10y with severe ME/CFS and reports a substantial improvement. Now coaches others professionally.

  • Martin's Paradoxical Temporary ME/CFS Remission Story

    Relapsed ME/CFS Very severeIll 10 yearsEffect faded healthrising.org Jul 2024

    Martin became ill after EBV reactivation, Lyme disease and food poisoning, and was bedbound for the last three of his ten years of illness with severe post-exertional malaise. Lyrica, benzodiazepines, tianeptine, quetiapine, rapamycin and methylprednisolone…

  • Melody's ME/CFS, Fibromyalgia and Long COVID Recovery Story

    Near-full ME/CFS SevereIll 3 years healthrising.org · sells Jun 2024

    Melody was infected early in the pandemic, hospitalised with double pneumonia, then bedbound for six months and homebound on supplemental oxygen for two and a half years despite thirteen prescription drugs and multiple specialists. She credits a combination…

  • HHV-6/EBV testing UK? / Remitting symptoms on Molnupiravir?

    Relapsed ME/CFS SevereIll 18 yearsEffect faded forums.phoenixrising.me May 2024

    Took a standard course of molnupiravir to treat a COVID infection in 2023, against a backdrop of ME/CFS since 2006 (severity "varying from mild to severe") plus Long Covid from 2022 that had left her "mostly bedbound for a year." Reports "my ME/CFS symptoms…

  • Flo Stops the Leaks in Her Boat at Last

    Near-full ME/CFS SevereIll 37 years healthrising.org · sells May 2024

    Flo became ill with ME/CFS and fibromyalgia after mold exposure roughly thirty-seven years before the post, at her worst unable to watch TV, read or follow conversations, with regular vertigo. Years of craniosacral therapy, PRP injections, hydrogen peroxide…

  • My long covid recovery recap: the timeline and tools

    Near-full Long COVID SevereIll 3 years arielconn.substack.com Feb 2024

    Ariel Conn's recovery centered on mind-body approaches: Claritin as one of only two things that helped in her first 18 months, then somatic meditations, Nicole Sachs' JournalSpeak journaling method starting December 2021, somatic and Internal Family Systems…

  • Chronic Fatigue Syndrome: My 13 Year Crash to Cure Story

    Substantial ME/CFS SevereIll 13 years rebeccatolin.com · sells Jan 2024

    Credits trauma and somatic work, CBT or psychological work and somatic tracking. Rebecca was ill 13y with severe ME/CFS and reports a substantial improvement. Broadcast journalist; Sarno/TMS work; now sells coaching.

  • Nina Bosselaar

    Full recovery Long COVID SevereIll 3 years longcovidcured.com Nov 2023

    Nina spent about two years trying physiotherapy, occupational therapy, haptotherapy, osteotherapy and a multidisciplinary rehab program without success before shifting to a Tension Myositis Syndrome (TMS) mind-body approach centered on expressive journaling,…

  • Gary

    Full recovery Long COVID SevereIll 4 months positivelycovid.org · sells Nov 2023

    Credits trauma and somatic work and Sachs course. Gary was ill 4mo with severe long COVID and is described as fully recovered. Used a paid Freedom from Chronic Pain course.

  • Efthymios's Artificial Intelligence-Aided ME/CFS Recovery Story

    Full recovery ME/CFS SevereIll 14 years healthrising.org Oct 2023

    Efthymios became ill in 1999 after stopping a medication and had full-blown ME/CFS by 2004, functioning at about four out of ten. From late 2012 he logged his symptoms, diet and supplements for 434 days and used machine-learning analysis of his own data to…

  • My Long Covid Recovery Story

    Substantial Long COVID SevereIll 1.67 years positivelycovid.org Jun 2023

    Roberto's recovery centered on polyvagal-theory nervous-system regulation exercises, whose specifics aren't detailed, combined with psychological work addressing childhood trauma and perfectionism patterns he linked to his illness. He had been hospitalized…

  • Leon Williams

    Full recovery Long COVID SevereIll 2 years longcovidcured.com Mar 2023

    Leon Williams recovered using a mind-body/neuroplasticity approach rooted in Dr. John Sarno's Tension Myositis Syndrome (TMS) framework, practicing somatic tracking meditation, expressive writing, breathwork and general meditation, with gardening as a…

  • After 37 Years Flo Finds Her Answer

    Full recovery ME/CFS SevereIll 37 years healthrising.org · sells Feb 2023

    Flo lived with ME/CFS, fibromyalgia and migraines for 37 years, mostly homebound with severe brain fog, vertigo and light and sound sensitivity. She worked through decades of bodywork, energy and conventional therapies with limited success. EFT tapping and…

  • It was a great revelation and relief to discover that I had the power to heal myself

    Full recovery Long COVID SevereIll 5 months recoverynorway.org Jan 2023

    Began following Nicole Sachs' free "Healing Yourself" videos and her paid "Freedom from Chronic Pain" course, alongside Dr Howard Schubiner's "Unlearn Your Pain" resources, substituting "pain" for "symptoms" as he worked through them from late October 2022,…

  • Chronic Fatigue Syndrome: one woman's story of recovery

    Full recovery ME/CFS SevereIll 2.5 years yogauonline.com Nov 2022

    Credits CBT or psychological work, diet, somatic and breathwork. Anaya was ill 2.5y with severe ME/CFS and is described as fully recovered. Mindset shift and somatic breathwork; ran 42km ultra days later.

  • CFS recovery success stories on YouTube

    Full recovery ME/CFS forums.phoenixrising.me Nov 2022

    Credits CBT or psychological work and somatic tracking. Nick had ME/CFS and is described as fully recovered. Sarno-style mind-body case; forum doubted the diagnosis.

  • Healing from Long Covid with water fasting

    Substantial Long COVID SevereIll 1 months waterfasting.org · sells Oct 2022

    About a month after a severe bout of COVID that left her hypoxic (93% oxygen saturation), with high blood pressure, fatty liver and high insulin, Michelle began a water fast intended to run 21 days, with some dry-fasting stretches, under a coach's guidance.…

  • Matt Sibert

    Near-full Long COVID SevereIll 1 yearEffect faded longcovidcured.com Aug 2022

    Matt Sibert credits reading Dr. John Sarno's books The Divided Mind and The Mindbody Prescription, then practicing somatic tracking, somatic meditations, expressive writing/journaling, breathing exercises and general meditation, after an earlier…

  • Amy Engkjer

    Full recovery Long COVID Very severeIll 1 year longcovidcured.com Feb 2022

    She combined a concussion protocol (limiting phone use and conversation), neurofeedback, a five-hour NLP (Neuro Linguistic Programming) session, EMDR, physical therapy, shiatsu, daily cold showers, an anti-inflammatory diet, meditation, and journaling,…

  • Esther

    Near-full Long COVID SevereIll 1.25 years positivelycovid.org Feb 2022

    Credits trauma and somatic work. Esther was ill 15mo with severe long COVID and is described as almost fully recovered. Same Esther as Recovery Norway and Long Covid Cured.

  • ME/CFS Recovery Story

    Partial ME/CFS SevereIll 10 years eleanorsteinmd.ca · sells Jan 2022

    Credits brain retraining and trauma and somatic work. Mellissa was ill 10y with severe ME/CFS and reports a partial improvement. Guest post on doctor's site; still can't run a 10K.

  • I have learnt with this condition people get better from hope, kindness and love, not fear and catastrophe

    Full recovery Long COVID SevereIll 9 months recoverynorway.org Dec 2021

    Credits cognitive retraining developed with an unnamed psychology PhD candidate from Norway who had herself recovered from post-viral fatigue syndrome, after months in a self-organised online pacing support group and a referral to an NHS CFS/ME specialist…

  • Berlin Cures? Could BC 007 Help With Long COVID and ME/CFS? (exerciser)

    Substantial Long COVID Very severeEffect faded healthrising.org Dec 2021

    This avid exerciser received a single 75-minute BC 007 IV infusion with three days of hospital monitoring, after long COVID had left the person bedridden with episodes of temporary paralysis and unable to follow conversations. The infusion produced a marked,…

  • Berlin Cures? Could BC 007 Help With Long COVID and ME/CFS? (skier)

    Full recovery Long COVID Severe healthrising.org Dec 2021

    This cross-country skier and former Ironman athlete received a single 75-minute IV infusion of the investigational drug BC 007, with three days of hospital monitoring afterward, months after a COVID infection had left him severely debilitated, disoriented…

  • Alternative health and mind/body treatments return former aerobics instructor to health

    Full recovery ME/CFS Very severeIll 4 years healthrising.org · sells Nov 2021

    Jodi, a London aerobics instructor, became bedbound with ME/CFS after glandular fever while overworked and stressed. Over several years she improved using kinesiology, acupuncture, reiki, dietary changes, mantras and sound healing, crediting the process…

  • Kristin recovers from 6 years of ME/CFS POTS and MCS, PTSD and Bulimia

    Substantial ME/CFS SevereIll 6 yearsEffect faded cfsunravelled.com · sells Oct 2021

    Credits trauma and somatic work and brain retraining. Kristin was ill 6y with severe ME/CFS and reports a substantial improvement. Reached remission, relapsed, then rebuilt via deeper trauma work.

  • I realized there was nothing spectacularly wrong with my body. My fear of never getting better had kept me from getting better!

    Near-full Long COVID Very severeIll 8 months recoverynorway.org Sep 2021

    Esther's breakthrough came after hearing a podcast featuring psychotherapist Nicole Sachs and "Lieke from Amsterdam," which led her to journal about her emotions and read books by Dr. Sarno and Nicole Sachs, following roughly eight months of illness that…

  • ME/CFS in Remission from Mold Avoidance

    Full recovery ME/CFS Severe forums.phoenixrising.me May 2021

    After becoming severely ill with ME/CFS by late 2020 — to the point that even a shower risked triggering post-exertional malaise — he discarded all possessions, bought new clothes and a car, and relocated from a New York City apartment to a travel trailer in…

  • Oda Shares Her POTS and ME/CFS Recovery After 10 Years Using ANS REWIRE

    Full recovery ME/CFS SevereIll 10 years cfsunravelled.com · sells Apr 2021

    Oda's recovery combined daily thyroxine for diagnosed Hashimoto's hypothyroidism with the ANS REWIRE program (daily meditation and "postural rewiring" videos starting July 2017), gentle home yoga via the Yoga Studio app, one session of Thomas Hanna-method…

  • Two Surprising Stories of Self Healing from Chronic Fatigue Syndrome

    Full recovery ME/CFS Ill 4 years rebeccatolin.com Apr 2021

    Credits trauma and somatic work and surrender. Thomas was ill 4y with ME/CFS and is described as fully recovered. Photography and surrender over striving; climbing mountains later.

  • Patient Spotlight: I Promise to Love Myself for the Long Haul

    Partial Long COVID ModerateIll 9 months wearebodypolitic.com Jan 2021

    Credits trauma and somatic work and pacing. Lauren was ill 9mo with moderate long COVID and reports a partial improvement. Body Politic member; psychological shift, body still limited.

  • Severe Chronic Fatigue Syndrome Recovery After Six Years - Vera's Story

    Full recovery ME/CFS Very severeIll 6 years cfsunravelled.com · sells Dec 2020

    Credits trauma and somatic work and ayurveda. Vera was ill 6y with very-severe ME/CFS and is described as fully recovered. Norwegian; Panchakarma plus trauma work, left toxic home.

  • EST, Landmark Education, ME/CFS and Fibromyalgia: My Story

    Partial ME/CFS ModerateIll 40 years healthrising.org Feb 2020

    Cort Johnson developed ME/CFS around 1980 and did a roughly 60-hour EST training in January 1982, after which he felt like "a rocket blasting off" and went on to work, finish his degree and feel states of freedom he had never had, though he remained unable…

  • Trauma, EMDR helped remove a lot of pain from my body

    Substantial ME/CFS Severe forums.phoenixrising.me May 2019

    After more than a decade of ME/CFS with chronic kidney/adrenal pain and stimulant intolerance, did EMDR therapy followed by about two years of Internal Family Systems (IFS) work with a former Buddhist monk. Reports kidney pain subsiding for the first time in…

  • Severe post-Lyme ME/CFS patient achieves full remission after Taymount FMT

    Full recovery ME/CFS Very severeEffect faded forums.phoenixrising.me Feb 2019

    Kasia Vermaire, left severely symptomatic with digestive collapse after Lyme disease was declared "cured" by antibiotics, and at one point contemplating euthanasia from desperation, received an FMT at the Taymount Clinic in June 2018. She reported full…

  • Did finding an infection via Armin Labs have a positive influence on your treatment & recovery

    Partial ME/CFS Severe forums.phoenixrising.me Jan 2019

    Antibiotics for Borrelia found via Armin Labs testing gave her relief from "the unrelenting horror of Lyme disease pain and malaise," but she reports the years of undiagnosed infection left lasting autoimmune-type sequelae -- severe POTS, muscle weakness,…

  • Treatment with KDM Miraculous So Far, Need Help with Dysbiosis Though

    Substantial ME/CFS Very severeIll 30 years forums.phoenixrising.me Jan 2019

    After roughly 30 years of suspected chronic Lyme/ME-CFS that left him "near totally bed-ridden and almost not being able to speak," he began a multi-part KDM protocol in 2018 including subcutaneous Gammanorm, alternating Normix/Mutaflor, B12 injections, an…

  • ANS Rewire Program Works For Bed Bound 11 Year ME/CFS/FM Patient

    Full recovery ME/CFS Very severeIll 11 years healthrising.org · sells Feb 2018

    Peter, a businessman, developed ME/CFS and fibromyalgia after stress and trauma, becoming mostly bedbound for 11 years and running up significant debt on other treatments. He enrolled in Dan Neuffer's paid ANS Rewire course, a mind-body program of…

  • I was cured with GCMAF

    Full recovery ME/CFS Very severeIll 9 years forums.phoenixrising.me Dec 2017

    After 9 years ill, severely bedbound and intolerant of touch, light, sound and movement for over 3 years, she injected Goleic (oleic-acid-conjugated GcMAF) every 4 days for just over a year, having tried many other alternative treatments without success…

  • Frances Recovery Story

    Full recovery ME/CFS Ill 4 years theoptimumhealthclinic.com · sells Oct 2017

    Credits CBT or psychological work and trauma and somatic work. Frances was ill 4y with ME/CFS and is described as fully recovered. Describes recovery as a spiritual and personal development journey.

  • Easy Does It For Nathalie: A Chronic Fatigue Syndrome Improvement Story

    Partial ME/CFS Very severeIll 7 years healthrising.org · sells Oct 2017

    Tried Low Dose Naltrexone (immediate but partial relief from stiffness), a six-week high-dose course of Famvir that gave no benefit, and three years on Valcyte (valganciclovir), which brought her "back to life" out of a bedridden state within weeks but left…

  • Oxymatrine: What to expect with fatigue and how long? (And my on-going journey, info and questions.)

    Substantial ME/CFS SevereIll 8 years forums.phoenixrising.me Jun 2017

    Titrated oxymatrine up to one pill twice daily over 5-6 months, for ME/CFS that had left her housebound on constant bedrest and functioning at "about 35-40%." After an initial worsening (cold sweats, fever, vomiting), reports going "from functioning at about…

  • I feel a lot better after drinking this tea - which ingredient(s) are likely to be responsible?

    Partial ME/CFS Moderate forums.phoenixrising.me Dec 2016

    Two cups a day of a commercial bedtime herbal tea blend left this poster feeling "the most content I've felt in at least 4+ years," with a possible small cognitive lift, taking about 30 minutes to kick in each time. The report comes from very early in the…

  • A Decades Long Struggle with Chronic Fatigue Syndrome Ends

    Full recovery ME/CFS SevereIll 25 years healthrising.org · sells Aug 2016

    Kate, a high school teacher, developed a persistent flu-like illness in 1987 that left her severely disabled for 25 years with fevers, chills, muscle and joint pain and memory problems. Dr Lerner diagnosed an active HHV-6 infection and prescribed high-dose…

  • Amy's Story - from Athletic Go-Getter to Homebound and Back Up Again

    Substantial ME/CFS SevereIll 4 years healthrising.org · sells Aug 2016

    Amy was an athletic runner working 60-hour weeks whose progressive fatigue, triggered by fevers after long runs, left her mostly home- and bed-bound and unable to work within a year. Dr Lerner treated her with Valcyte and she improved to near-normal daily…

  • How I recovered.

    Near-full ME/CFS SevereIll 5 years forums.phoenixrising.me May 2016

    Combined a multi-part protocol -- twelve $325 Oxford "homeostasis" peptide shots starting September 2013, a rotary diversified (Theron Randolph) elimination diet, vitamin D, low-dose naltrexone, Remeron, the Gupta amygdala-retraining program, and removing…

  • Monet finds relief from mind/body practices plus homeopathy

    Near-full ME/CFS Very severeIll 13 years healthrising.org Apr 2016

    Monet developed ME/CFS and fibromyalgia after a reaction to a vaccination, becoming wheelchair-bound within nine months and mostly bedbound for over a decade. She pursued homeopathy, dietary change, herbal supplements and extensive spiritual and…

  • Katie Shares How She Broke the MECFS Relapse Cycle

    Full recovery ME/CFS ModerateIll 8 years cfsunravelled.com · sells 2016

    Credits CBT or psychological work, diet and trauma and somatic work. Katie was ill 8y with moderate ME/CFS and is described as fully recovered. Mindset shift, dropped perfectionism, protein-focused diet.

  • Emotional Healing Key for Fibromyalgia Patient

    Full recovery ME/CFS Very severeIll 10 years healthrising.org · sells Dec 2015

    Beth was diagnosed with fibromyalgia in 1987 and was mostly bedbound for close to a decade with severe fatigue, back pain, migraines and insomnia. She pursued Bach Flower Remedies, a candida diet, chiropractic, massage and Reiki alongside addressing…

  • My Full Recovery By TCM + TCM issues Q&A

    Near-full ME/CFS SevereIll 1 year forums.phoenixrising.me Sep 2015

    After about a year of conventional treatment failed to help CFS-like symptoms (rashes, fatigue, 2-3 hours of sleep a night, photosensitivity, unable to attend school), tried Traditional Chinese Medicine -- herbal formulas and diet changes -- switching…

  • Dr. Goldstein's Protocol Does the Trick for Mathew

    Full recovery ME/CFS Very severeIll 14 years healthrising.org Aug 2015

    Mathew, an entrepreneur, became severely ill with ME/CFS around 1990, with orthostatic intolerance so severe he could not sit up and sensitivity that left him unable to listen to voices for more than a minute, eventually bedridden. Over about two years he…

  • Louise Finds One Thing That Turns Life Around

    Full recovery ME/CFS Moderate healthrising.org · sells Jun 2015

    Louise, who had a prior history of anxiety and depression, developed post-viral fatigue after stress-induced poor sleep escalated into flu-like symptoms, severe muscle and joint pain and a sore throat that left her unable to work. Amitriptyline, rest,…

  • Yoga Slowly Coaxes Fiona Back to Health

    Substantial ME/CFS Very severeIll 12 yearsEffect faded healthrising.org May 2015

    Fiona, a PR executive, developed ME/CFS in the early 1990s after stress, poor diet and flu, and by 1992 was wheelchair-bound, too tired to hold a conversation and having panic attacks. Gentle yoga focused on relaxation and breathing, meditation and a…

  • Doing So Well On Modified Cowden Protocol

    Substantial ME/CFS SevereIll 19 yearsEffect faded forums.phoenixrising.me Apr 2015

    Nineteen years after a suspected tick bite left her unable to walk more than 10-20 minutes, a UK woman in her late 60s started a modified Cowden herbal protocol (Banderol/Cumanda, Andrographis 4/day, Japanese Knotweed 12/day for about three months, teasel…

  • Deanna Gets Better the Lerner Way: A Valcyte ME/CFS Success Story

    Full recovery ME/CFS Severe healthrising.org · sells Apr 2015

    Deanna was a physically fit 39-year-old when progressive ME/CFS left her mostly homebound, sleeping 12-15 hours a day and needing to crawl up stairs. Under Dr Martin Lerner she used Valcyte with stress reduction, pacing and steroids, and is described as…

  • 20 Years of Fibromyalgia, CFS, PTSD, Depression End

    Full recovery ME/CFS SevereIll 20 years cfsunravelled.com · sells Mar 2015

    Credits mindset book, EFT tapping and diet. Leah was ill 20y with severe ME/CFS and is described as fully recovered. EFT, anti-inflammatory diet, lost 70lb.

  • Methylation: From feeling FANTASTIC back to Square One

    Relapsed ME/CFS Effect faded forums.phoenixrising.me Feb 2015

    Took a high-dose B12 protocol and reports it left her hypothyroid after "spending too much energy" on the high doses. Whatever initial benefit there was did not sustain, and she was left addressing a new thyroid problem instead — the treatment causing harm…

  • Going Under the Knife Does It

    Near-full ME/CFS Severe healthrising.org Feb 2015

    Diane had sinus surgery, along with herbs, nutritional supplements, hormone supplements, and "serious meditation"; IVIG was also tried but had no effect. None of these interventions are given specific names, doses, or durations. She fell ill in her mid-30s…

  • Sinus Surgery Does the Trick

    Full recovery ME/CFS SevereIll 1 year healthrising.org Jul 2014

    Diane underwent sinus surgery — the specific procedure isn't named — and also tried IVIG (intravenous immunoglobulin), which the page says had no effect; no other treatment names, doses, or durations are given. She had been a high-energy woman in her mid-30s…

  • Ten Years of healing: No more congestive heart failure, FMS, CFS and minus 100 pounds

    Substantial ME/CFS SevereIll 13 years forums.phoenixrising.me Oct 2013

    After 13+ years of CFS that left her unable to walk well, she added transdermal cyanocobalamin spray and methylcobalamin/methylfolate to her regimen and reported "the first time in over 13 years that my energy has really come back," with markedly improved…

  • Feeling generally better

    Substantial ME/CFS Very severeIll 30 years forums.phoenixrising.me May 2013

    Thirty years after a mono-triggered onset that left her housebound, unable to drive or cook, with severe vertigo and depression, she layered years of high-dose Famvir and Acyclovir and about two years of Mycoplasma antibiotics with, more recently, roughly…

  • My Story - Dan Neuffer's ME/CFS Fibromyalgia POTS Recovery

    Full recovery ME/CFS SevereIll 5 yearsEffect faded cfsunravelled.com · sells Oct 2012

    Dan Neuffer's page gives only general categories of treatment rather than specific drugs or doses: he says he "healed my gut and changed my diet" under a doctor's guidance, used unnamed supplements to support metabolism, detoxification and oxidative stress,…

  • CityChanger's Mold Avoidance Update

    Partial ME/CFS Severe forums.phoenixrising.me May 2012

    Camping in a tent on a friend's remote mountain property over several weeks left her hiking, "full of energy" and mentally active, but a single outing into town (including a Whole Foods visit) "slammed" her within hours, triggering orthostatic intolerance,…

  • Things I have learned by overcoming Chronic Fatigue Syndrome

    Full recovery ME/CFS Severe wordpress.com · sells Mar 2011

    Credits trauma and somatic work and TAT tapping. Lehari had severe ME/CFS and is described as fully recovered. TAT tapping resolved suppressed emotions; sells e-book.

  • Diagnosis Unknown - Story of CFS Recovery

    Substantial ME/CFS Very severe forums.phoenixrising.me Nov 2010

    Book-excerpt account (from "Diagnosis Unknown") quoted on the forum describing Linda Smith's illness, which had left her unable to walk unassisted, in constant pain, with swollen feet/fingers and largely bedridden after 5+ years. Following an extended…

  • Anyone recovered after discovering residential toxic mold exposure?

    Relapsed ME/CFS Effect faded forums.phoenixrising.me Jun 2010

    A naturopath-supervised candida-free diet plus mold avoidance and herbal supplements left her "almost symptom free" for about two years, "though not cured." Major life stresses then triggered a relapse and she "became horribly ill again," so the substantial…

  • 3 day fasting to reset immune system

    Partial ME/CFS Moderate s4me.info

    Before getting ME, andypants had done several 3-to-10-day fasts and felt refreshed by them; the first attempts after falling ill, at up to 44 hours, instead left their muscles "really achey" with mild PEM and seemed to make things worse. Scaling back to a…

  • 2 enlightening fasting experiences

    Partial ME/CFS Severe forums.phoenixrising.me

    With severe ME/CFS and food intolerances that left her able to eat little beyond rice cakes and vegetables, Countrygirl used repeated 3-day fasts during periods when her illness was worsening. Each fast moved her from bedbound up to being able to sit in an…

  • Water fasting - Can I take my meds?

    No benefit ME/CFS forums.phoenixrising.me

    pamojja had fasted 21 days without problems at age 20, before becoming ill, but a 7-day water fast attempted after developing ME/CFS in their 40s went badly. It left them prediabetic and triggered a severe magnesium deficiency, with painful muscle cramps…

  • Fasting - full water only variety - has anyone here tried it?

    Relapsed ME/CFS SevereEffect faded forums.phoenixrising.me

    Eddy M, who has an atypical ME/CFS with debilitating muscular fatigue, neuropathic symptoms and PEM, tried a planned 7-day water fast but abandoned a second attempt after only 8-10 hours. Rather than helping, the fast made things worse: fatigue gradually…

  • Anna de Vries' Story

    Full recovery Long COVID SevereIll 4 years the-recovery-hub.org

    She recovered from post-viral ME/CFS using Jan Rothney's Reset to Thrive programme, introduced via Rothney's book Breaking Free, combined with trauma therapy, somatic work including Trauma Releasing Exercises (TRE) and haptotherapy, and brain-retraining and…

  • Long COVID Recovery - 3 Personal Stories of Healing (Heydieh)

    Substantial Long COVID Severe amaregenmed.com · sells

    Heydieh's protocol combined three EBOO/F (extracorporeal blood oxygenation, ozonation and filtration) sessions with about five high-dose "10 Pass" ozone sessions, hyperbaric oxygen therapy, and IV infusions of high-potency vitamin C, NAD, methylene blue and…

  • Penny's ATNS recovery story

    Outcome unclear ME/CFS ppdassociation.org

    Credits trauma and somatic work. Penny had ME/CFS and is listed among the recovery accounts. Linked from the Living Proof recovery wall.

  • Vanessa's journey: from chronic illness to recovery

    Substantial Long COVID Very severeIll 4 years livingproof.org.uk · sells

    Credits trauma and somatic work, SIRPA and somatic. Vanessa was ill 4y with very-severe long COVID and reports a substantial improvement. 90% recovered; 50+ symptoms including POTS and MCAS.

  • Cedar Brown's Story

    Full recovery ME/CFS SevereIll 5 years the-recovery-hub.org · sells

    She recovered from ME/CFS, alongside POTS, mold illness, IBS and anxiety, using a combination of Low Dose Naltrexone (LDN), the Edison Effect Program by Anj Garneri, Trauma Healing Accelerated and somatics work, pacing, IFS parts work and mold remediation,…

  • Emotional Healing Key for Fibromyalgia Patient

    Substantial ME/CFS healthrising.org

    Credits trauma and somatic work. An unnamed patient had ME/CFS and reports a substantial improvement. Fibromyalgia-only patient.

  • Overcoming ME - My Path to Recovery and Regaining My Life

    Full recovery ME/CFS ModerateIll 18 years ansrewire.com · sells

    Credits brain retraining, trauma and somatic work and CBT or psychological work. Sue was ill 18y with moderate ME/CFS and is described as fully recovered. 18y including remission gap; psychotherapy plus ANS REWIRE.

  • How Recovery from ME/CFS and POTS Was Enabled by Family Psychotherapy

    Full recovery ME/CFS SevereIll 5 years cfsunravelled.com · sells

    Credits brain retraining and trauma and somatic work. Mollie was ill 5y with severe ME/CFS and is described as fully recovered. Husband's account; IFS family therapy plus ANS REWIRE.

  • Emotional Healing to Slide into Full Fibromyalgia Recovery

    Full recovery ME/CFS SevereIll 10 years cfsunravelled.com

    Credits diet, trauma and somatic work and energy healing. Beth was ill 10y with severe ME/CFS and is described as fully recovered. Bach Flower Remedies, shamanic healing, emotional work.

  • Beth French's Journey from ME/CFS to Ultra-Marathon Swimmer

    Full recovery ME/CFS Very severeIll 10 years cfsunravelled.com

    Credits trauma and somatic work, meditation and relocation. Beth was ill 10y with very-severe ME/CFS and is described as fully recovered. Later swam the Channel; credits meditation and motherhood.

  • CFS and how i found my way out

    Substantial ME/CFS SevereIll 4 years a-spiritual-journey-of-healing.com

    Gavin's turning point was Blackmores PPMP (a cellular-dose potassium phosphate/magnesium phosphate supplement), taken alongside years of therapy, meditation, and doctor-prescribed antidepressants; he says he felt well again within 10 seconds of starting it.…

  • Jake Hollis - The Fatigue Psychologist

    Full recovery ME/CFS s4me.info · sells

    Credits CBT or psychological work and trauma and somatic work. Jake Hollis had ME/CFS and is described as fully recovered. S4ME calls it survivorship bias.