ME/CFS
Outcome unclear
ME/CFS: subtle treatment effects, cold shower rinse and Chi Kung perk-ups
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Feb 2020
Summary
A Reddit user in r/cfs described several self-management approaches without detailing their overall severity or course. They found a treatment's effects subtle but real, used a cold rinse at the end of showers to avoid post-shower hypotension, mentioned buspirone as having no side effects, and got a perk-up from Chi Kung classes.
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What they tried
Also tried
Their words about each treatment
- biofeedback/neurofeedback · Helped
Yes. Its interesting and the effects are subtle but I believe real. It takes time, its not a one session thing.
In context ↗ - cold water at the end of a hot shower · Helped
I feel the difference if I forget to do it
In context ↗ - Buspirone · Not said
Buspirone is miracle in the way it does not have secondary effects, I should have rephrased that.
In context ↗ - Chi Kung · Helped
Chi Kung is quite helpful for me. Its very gentle and soothing. I get a nice perk up after class.
In context ↗
Adverse events
- “you kind feel weird for a few weeks as it enters the system” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
I believe this lowers your temperature a bit from the hottness and avoids the hipotension.
In context ↗ - Anxiety & low mood
taking something to reduce anxiety symptoms does alter one’s perspective and helps to figure out the next step.
In context ↗