Hospitalised with long COVID and insomnia, no improvement 11 months on
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill for
- 11 months
- Last post
- Jun 2023
In their words
- Condition: Long COVID
The Aniexty the depression the insomnia all started when I was hospitalized from Covid.
In context ↗ - At worst: Mild
My anxiety gets so bad that i bring a change of shirts to work.
In context ↗ - Now: No benefit
I'm 11 months and 4 trips to the psychward in.
In context ↗ - Began after: COVID
The Aniexty the depression the insomnia all started when I was hospitalized from Covid.
In context ↗
Read from 13 of their posts and comments; links to the 9 this page draws on
Summary
A Reddit user developed long COVID when they were hospitalised on 14 July 2022, with anxiety, depression and insomnia starting then. They worked through repeated medication trials, were baker acted, had four short psychiatric ward stays and 12 weeks of intensive outpatient therapy. Propranolol was the only drug that steadied them, easing the shakes and sweating but not the thoughts; 11 months in, insomnia needed a handful of pills.
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What they tried
Also tried
Their words about each treatment
- Lexapro · Not said
i got off Xanax and lexipro 2 weeks ago i had withdrawal symptoms so bad that i slept for 22 hours straight
In context ↗ - Vexafline (venlafaxine) · No change
Im on Vexafline, propanol and ambien right now. ... Nothing seems to work.
- Hydroxyzine · No change
Hydroxyzine did nothing for me neither did trazadone.
In context ↗ - trazodone · No change
Trazadone does not work for me.
In context ↗ - propanol (propranolol) · Helped
the only thing that keeps me level ... It stops the shakes the crazy sweating.
In context ↗ - Ambien · Worse
They literally put me to sleep for 42 hours. When i woke up i was groggy as shit.
In context ↗ - therapy / IOP · Not said
I've done 12 weeks of IOP.
In context ↗ - melatonin · Helped
That's with double dosing trazadone and melatonin.
In context ↗ - gym exercise · Not said
I hit the gym harder to wear myself our more.
In context ↗ - cold showers · Helped
Ice and cold showers helped me.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 3 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| July 14th 2022 | hospitalised from COVID; anxiety, depression and insomnia beganThe Aniexty the depression the insomnia all started when I was hospitalized from Covid.In context ↗ | Not stated |
| October 2022 | complete meltdown; baker acted and held in a psych wardI was baker acted a few weeks ago when i had a complete meltdown.In context ↗ | Mild |
| October 2022 | came off Xanax and Lexapro; withdrawal, slept 22 hoursWhen i got off Xanax and lexipro 2 weeks ago i had withdrawal symptoms so bad that i slept for 22 hours straight.In context ↗ | Mild |
| June 2023 | still can't sleep; back at the gym; four psychiatric ward stays in totalmy insomnia is manageable at the cost of being a human. I literally take a handful of pills just for insomniaIn context ↗ | Mild |
Adverse events
- Alprazolam (Xanax)“i had withdrawal symptoms so bad that i slept for 22 hours straight.” In context ↗ Withdrawal problems
- Escitalopram (Lexapro)“i had withdrawal symptoms so bad that i slept for 22 hours straight.” In context ↗ Withdrawal problems
- Venlafaxine (Effexor)“Ambien, Venafoexen Propanol. They literally put me to sleep for 42 hours. When i woke up i was groggy as shit.” In context ↗ Side effects
- Propranolol (Inderal)“Ambien, Venafoexen Propanol. They literally put me to sleep for 42 hours. When i woke up i was groggy as shit.” In context ↗ Side effects
- “I've been on so many different meds i feel like a zombie. Ive lost all interest in everything i used to enjoy.” In context ↗ Mood or psychiatric effects
- “I literally take a handful of pills just for insomnia and it's side effects. I feel like a zombie most days.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Anxiety & low mood
The Aniexty the depression the insomnia all started when I was hospitalized from Covid.
In context ↗ - Sleep problems
I still can't sleep.
In context ↗ - Temperature regulation
It stops the shakes the crazy sweating.
In context ↗