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Long COVID Mild → no benefitIll for 11 months

Hospitalised with long COVID and insomnia, no improvement 11 months on

Condition
Long COVID
At worst
Mild (working or studying, with limits)
Ill for
11 months
Last post
Jun 2023
In their words
  • Condition: Long COVIDThe Aniexty the depression the insomnia all started when I was hospitalized from Covid. In context ↗
  • At worst: MildMy anxiety gets so bad that i bring a change of shirts to work. In context ↗
  • Now: No benefitI'm 11 months and 4 trips to the psychward in. In context ↗
  • Began after: COVIDThe Aniexty the depression the insomnia all started when I was hospitalized from Covid. In context ↗
Read from 13 of their posts and comments; links to the 9 this page draws on

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Summary

A Reddit user developed long COVID when they were hospitalised on 14 July 2022, with anxiety, depression and insomnia starting then. They worked through repeated medication trials, were baker acted, had four short psychiatric ward stays and 12 weeks of intensive outpatient therapy. Propranolol was the only drug that steadied them, easing the shakes and sweating but not the thoughts; 11 months in, insomnia needed a handful of pills.

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What they tried

Their words about each treatment
  • Lexapro · Not saidi got off Xanax and lexipro 2 weeks ago i had withdrawal symptoms so bad that i slept for 22 hours straight In context ↗
  • Vexafline (venlafaxine) · No changeIm on Vexafline, propanol and ambien right now. ... Nothing seems to work.
  • Hydroxyzine · No changeHydroxyzine did nothing for me neither did trazadone. In context ↗
  • trazodone · No changeTrazadone does not work for me. In context ↗
  • propanol (propranolol) · Helpedthe only thing that keeps me level ... It stops the shakes the crazy sweating. In context ↗
  • Ambien · WorseThey literally put me to sleep for 42 hours. When i woke up i was groggy as shit. In context ↗
  • therapy / IOP · Not saidI've done 12 weeks of IOP. In context ↗
  • melatonin · HelpedThat's with double dosing trazadone and melatonin. In context ↗
  • gym exercise · Not saidI hit the gym harder to wear myself our more. In context ↗
  • cold showers · HelpedIce and cold showers helped me. In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered3 mo6 mo9 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 3 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
July 14th 2022hospitalised from COVID; anxiety, depression and insomnia beganThe Aniexty the depression the insomnia all started when I was hospitalized from Covid. In context ↗Not stated
October 2022complete meltdown; baker acted and held in a psych wardI was baker acted a few weeks ago when i had a complete meltdown. In context ↗Mild
October 2022came off Xanax and Lexapro; withdrawal, slept 22 hoursWhen i got off Xanax and lexipro 2 weeks ago i had withdrawal symptoms so bad that i slept for 22 hours straight. In context ↗Mild
June 2023still can't sleep; back at the gym; four psychiatric ward stays in totalmy insomnia is manageable at the cost of being a human. I literally take a handful of pills just for insomnia In context ↗Mild

Adverse events

  • Alprazolam (Xanax)“i had withdrawal symptoms so bad that i slept for 22 hours straight.” In context ↗ Withdrawal problems
  • Escitalopram (Lexapro)“i had withdrawal symptoms so bad that i slept for 22 hours straight.” In context ↗ Withdrawal problems
  • Venlafaxine (Effexor)“Ambien, Venafoexen Propanol. They literally put me to sleep for 42 hours. When i woke up i was groggy as shit.” In context ↗ Side effects
  • Propranolol (Inderal)“Ambien, Venafoexen Propanol. They literally put me to sleep for 42 hours. When i woke up i was groggy as shit.” In context ↗ Side effects
  • “I've been on so many different meds i feel like a zombie. Ive lost all interest in everything i used to enjoy.” In context ↗ Mood or psychiatric effects
  • “I literally take a handful of pills just for insomnia and it's side effects. I feel like a zombie most days.” In context ↗ Side effects

Symptoms mentioned

Their words about their symptoms
  • Anxiety & low moodThe Aniexty the depression the insomnia all started when I was hospitalized from Covid. In context ↗
  • Sleep problemsI still can't sleep. In context ↗
  • Temperature regulationIt stops the shakes the crazy sweating. In context ↗

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