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ME/CFS Outcome unclear

ME/CFS crashes after talking, unable to form sentences; stimulants helped ADHD only

Condition
ME/CFS
At worst
Not stated
Ill for
Not stated
Last post
Sep 2021
In their words
  • Condition: ME/CFSI know that stimulants are often highly counter-productive for people with ME but my experience is that they have been useful for managing ADHD In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

Osprey 66998 described ME/CFS with fatigue and crashes after talking to doctors or supervisors, leaving them unable to form sentences. They said pacing was a struggle and that ADHD made it hard to occupy themselves while fatigued. They had taken stimulants for about 18 months and found them useful for managing ADHD, though they noted stimulants are often counter-productive in ME. No overall recovery or change in ME/CFS was reported.

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What they tried

Their words about each treatment
  • stimulants · Helpedmy experience is that they have been useful for managing ADHD - althought it's only been about 18 months since i started In context ↗
  • pacing · Not saidPacing is inherently difficult and a struggle In context ↗

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseI go home and crash and am incapable of forming sentences. In context ↗

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