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ME/CFS Moderate → somewhat betterIll 5 years before improving or writing

ME/CFS limited what they could do at first, now somewhat better

Condition
ME/CFS
At worst
Moderate (mostly housebound)
Ill before improving or writing
5 years
Last post
Apr 2026
In their words
  • Condition: ME/CFSSo i've had ME/CFS for about 5 years now ( currently 20 y/o ) In context ↗
  • At worst: ModerateIm not bedbound fortunately , but limited in what i can do In context ↗
  • Now: Somewhat betterI started off really quite bad but have since gained the ability to do some of the things I want to do :) In context ↗
Read from 3 of their posts and comments; links to the 3 this page draws on

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Summary

Cardinal 88489 became ill with ME/CFS around age 15 and was 'really quite bad' at first, not bedbound but limited in what they could do. By July 2025, aged 19, they had gained the ability to do some of the things they wanted to do. By April 2026, aged 20 and about five years ill, they still had ME/CFS and woke unrefreshed; they usually needed a one- to two-hour nap one to four hours after waking, after which their ability to do tasks increased.

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Their path

Very severeSevereModerateMildNear normalRecoveredonset12 mo2 y3 y4 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

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WhenWhat happenedWhere they were
2020-2021 (age 15)became ill with ME/CFS around age 15got ill around turning 15 ... I started off really quite bad In context ↗Moderate
2025-07-20gained ability to do some things they want, not bedboundIm not bedbound fortunately , but limited in what i can do ... have since gained the ability to do some of the things I want to do In context ↗Mild
2026-04-12still limited by unrefreshing sleep and needs a daily nap before doing tasksi've had ME/CFS for about 5 years now ( currently 20 y/o ) ... I might feel fine ... until i try to begin an activity In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Sleep problemsI wake up unrefreshed and often feel better as the day progresses In context ↗
  • Post-exertional malaiseif i do amything before this 'nap' Not only is it more difficult , and my energy decreases quicker , but also it will affect me more during the rest of the day In context ↗

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