ME/CFS
Moderate → somewhat betterIll 5 years before improving or writing
ME/CFS limited what they could do at first, now somewhat better
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 5 years
- Last post
- Apr 2026
In their words
- Condition: ME/CFS
So i've had ME/CFS for about 5 years now ( currently 20 y/o )
In context ↗ - At worst: Moderate
Im not bedbound fortunately , but limited in what i can do
In context ↗ - Now: Somewhat better
I started off really quite bad but have since gained the ability to do some of the things I want to do :)
In context ↗
Summary
Cardinal 88489 became ill with ME/CFS around age 15 and was 'really quite bad' at first, not bedbound but limited in what they could do. By July 2025, aged 19, they had gained the ability to do some of the things they wanted to do. By April 2026, aged 20 and about five years ill, they still had ME/CFS and woke unrefreshed; they usually needed a one- to two-hour nap one to four hours after waking, after which their ability to do tasks increased.
Ask Miruvor AI
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2020-2021 (age 15) | became ill with ME/CFS around age 15got ill around turning 15 ... I started off really quite badIn context ↗ | Moderate |
| 2025-07-20 | gained ability to do some things they want, not bedboundIm not bedbound fortunately , but limited in what i can do ... have since gained the ability to do some of the things I want to doIn context ↗ | Mild |
| 2026-04-12 | still limited by unrefreshing sleep and needs a daily nap before doing tasksi've had ME/CFS for about 5 years now ( currently 20 y/o ) ... I might feel fine ... until i try to begin an activityIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Sleep problems
I wake up unrefreshed and often feel better as the day progresses
In context ↗ - Post-exertional malaise
if i do amything before this 'nap' Not only is it more difficult , and my energy decreases quicker , but also it will affect me more during the rest of the day
In context ↗