Housebound with ME/CFS and unable to work, somewhat better after improved mental health
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- Not stated
- Last post
- May 2026
In their words
- Condition: ME/CFS
even while i was on it my ME/CFS was awful.
In context ↗ - At worst: Moderate
I'm on the severe side of moderate, i guess? i'm housebound most days and can't work.
In context ↗ - Now: Somewhat better
I had some improvement in my mental health in the past few months and my symptoms have improved.
In context ↗
Read from 6 of their posts and comments; links to the 5 this page draws on
Summary
Sequoia 32986 reports ME/CFS with post-exertional malaise, unrefreshing sleep and anxiety, and later notes comorbid POTS. They described being housebound most days and unable to work, needing help to get to the bathroom and days to recover after small tasks. In 2024 they said improved mental health had improved their symptoms, but in 2026 they described their ME/CFS as awful while on spiro. No onset date, duration or recovery is given.
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What they tried
What they credit
Also tried
Their words about each treatment
- managing how much i do in a day · Helped
what has helped is managing how much i do in a day
In context ↗ - wheelchair · Helped
Having a wheelchair means i can go out and do things.
In context ↗ - spiro · No change
my body could NEVER get enough salt on spiro, but even while i was on it my ME/CFS was awful
In context ↗
Approaches: Pacing
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| — | ME/CFS symptoms with PEM; onset not datedpanic attacks and anxiety can cause PEM and CFS symptomsIn context ↗ | Not stated |
| 2022-10-24 | Housebound most days and unable to work; needed help to the bathroomi'm housebound most days and can't work ... i've needed help to get up and go to the bathroom | Moderate |
| 2024-05-01 | Improved mental health in past few months; symptoms improvedI had some improvement in my mental health in the past few months and my symptoms have improved.In context ↗ | Not stated |
| 2026-05-17 | Still ME/CFS awful while on spiro; comorbid POTSI'm also Comorbid with POTS ... even while i was on it my ME/CFS was awful.In context ↗ | Not stated |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
panic attacks and anxiety can cause PEM and CFS symptoms
In context ↗ - Sleep problems
i sleep 8 hours a night and wake up feeling tired. a lot of days i'll have a nap midday too and that won't help.
In context ↗ - POTS & dysautonomia
I'm also Comorbid with POTS
In context ↗ - Anxiety & low mood
I have CPTSD from familial trauma and intense panic attacks.
In context ↗
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