ME/CFS
No benefit
ME/CFS with payback after activity, no improvement; electric wheelchair lets them keep up
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Jul 2026
In their words
- Now: No benefit
I didn’t notice any change.
In context ↗
Read from 13 of their posts and comments; links to the 7 this page draws on
Summary
Wave 85578, in the UK, described ME/CFS that left them needing a break from existing, ideally twice a day, and payback after activity. A hired wheelchair for a few days away let them keep up with healthy people for hours without payback, and they soon bought their own folding electric chair. Keeping their dog cost them their health.
Ask Miruvor AI
What they tried
Their words about each treatment
- wheelchair · Helped
You gave me the courage to use a hired wheelchair for a few days away and it made such a difference!
In context ↗ - walking stick · Helped
I used a stick for quite a while as it helped with fatigue, particularly when standing still.
In context ↗ - naps · Helped
If I don’t nap I get into the ‘tired but wired’ state and find it much harder to sleep at night.
In context ↗ - beta blockers · No change
I didn’t notice any change.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2024-05-22 | hired a wheelchair for a few days away and could keep up with healthy peopleI was able to keep up with healthy people for hours at a timeIn context ↗ | Mild |
| 2024-12-11 | kept an adopted dog and their health sufferedWe kept him but my health paid the price.In context ↗ | Not stated |
| 2026-07-31 | using a folding electric wheelchair they cannot lift aloneI use a Lith Tech Smart Chair.In context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I did so much more than I would usually have managed and without such payback.
In context ↗ - Sleep problems
If I don’t nap I get into the ‘tired but wired’ state and find it much harder to sleep at night.
In context ↗ - Headaches & migraine
Migraine cap which can be frozen.
In context ↗