ME/CFS crashes after small exertion, somewhat better with rest and pacing
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- Nov 2025
In their words
- Condition: ME/CFS
also chronic fatigue syndrome
In context ↗ - At worst: Severe
I ended up in A&E then slept for two weeks on and off. I even had to eat meals with my eyes closed.
In context ↗ - Now: Somewhat better
From where I was last year until now there is slight improvement
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Orchid 15516 was diagnosed with chronic fatigue syndrome and FND after a first full-body crash last July that put them in A&E and left them sleeping for two weeks on and off. Their symptoms included heart racing, palpitations, tremors, affected eyesight and exhaustion for days after small exertion. By November 2025 resting and pacing had brought slight improvement, though they still crashed and struggled to move on bad days.
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What they tried
What they credit
Also tried
Their words about each treatment
- Resting and pacing · Helped
Some things are unavoidable and I still crash but it is getting slightly less.
In context ↗ - therapy with a neuro psychologist · Not said
I have started therapy with a neuro psychologist for the FND
In context ↗
Approaches: Pacing
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| last July | first full-body crash, A&E, slept two weeks, ate with eyes closedI ended up in A&E then slept for two weeks on and off. I even had to eat meals with my eyes closed.In context ↗ | Severe | |
| 2025-11-24 | slight improvement with resting and pacing, still crashing on bad daysI have adapted my whole life and do things slower and differently with lots of rest breaks ... it is getting slightly lessIn context ↗ | Moderate | Pacing and the energy envelope |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
any small exertion that would normally have not even mattered can leave me exhausted for days
In context ↗ - Heart symptoms & palpitations
my symptoms now are heart racing and palpitations
In context ↗ - Vision problems
the tiredness also affects my eyesight
In context ↗ - Muscle weakness
on the bad I still struggle to move
In context ↗ - Sleep problems
slept for two weeks on and off
In context ↗ - Anxiety & low mood
I struggle mental health wise
In context ↗
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