ME/CFS
Severe → no benefit
Bedridden for years with ME/CFS, still bedridden and no better after upright sitting
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- Not stated
- Last post
- Jul 2024
In their words
- Condition: ME/CFS
I have severe me/cfs and have been bedridden for years.
In context ↗ - At worst: Severe
I have severe me/cfs and have been bedridden for years.
In context ↗ - Now: No benefit
I have severe me/cfs and have been bedridden for years. ... I crashed hard for days after that.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A Reddit user with severe ME/CFS, bedridden for years, also had POTS, anxiety and depression, and said they crash even from phone appointments. A psychologist had them sit upright for half an hour; they crashed hard for days and declined to return after the therapist dismissed their concerns and proposed repeating it. They remained bedridden, in anguish and doubting themselves.
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What they tried
Their words about each treatment
- psychologist / therapy · Worse
She asked me to stand, then later to sit. And kept me sitting up for half an hour. ... I crashed hard for days after that.
In context ↗ - prescriptions for anxiety and depression · Not said
my prescriptions for anxiety and depression
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | bedridden with severe ME/CFS for yearsI have severe me/cfs and have been bedridden for years.In context ↗ | Severe |
| 2024-07 | crashed after psychologist kept them sitting upright for half an hourI crashed hard for days after that.In context ↗ | Severe |
| 2024-07-22 | still bedridden, in anguish and self-doubt after the therapy crashI’m in so much anguish, but am I overreacting?In context ↗ | Severe |
Adverse events
- CBT and psychotherapy“I crashed hard for days after that.” In context ↗ Made symptoms worse
- CBT and psychotherapy“I feel like I got tortured.” In context ↗ Mood or psychiatric effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I don't have energy and crash even from phone appointments
In context ↗ - POTS & dysautonomia
I DIDN'T HAVE OXYGEN GOING TO MY BRAIN because of POTS (postural orthostatic tachycardia syndrome)
In context ↗ - Anxiety & low mood
I felt I might not be able to keep getting my prescriptions for anxiety and depression otherwise.
In context ↗