ME/CFS
Moderate → no benefit
Hives and dark thoughts with ME/CFS, still no improvement
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- Not stated
- Last post
- Jun 2026
In their words
- Condition: ME/CFS
It's the only way I can keep up with dental hygiene
In context ↗ - At worst: Moderate
manual, but I take my time, so it doesn't wear me out too badly
In context ↗ - Now: No benefit
They don't fix the problem entirely, but they help tremendously
In context ↗
Read from 5 of their posts and comments; links to the 4 this page draws on
Summary
The user had ongoing hives all over their torso that drove them to dark thoughts. They also got tremendous relief, though not complete, from giant salt tablets prescribed by their doctor. High-quality fish oil helped their skin a lot, and they sat down to brush their teeth with very soft Korean nano toothbrushes so it would not wear them out. They also blended high-calorie smoothies to drink when eating was hard.
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What they tried
Their words about each treatment
- fish oil · Helped
Lots of high quality fish oil has helped my skin a lot
In context ↗ - giant salt tabs · Helped a lot
I finally began getting relief from that when my doc prescribed giant salt tabs. They don't fix the problem entirely, but they help tremendously.
In context ↗ - smoothies · Not said
I've been blending up large batches of smoothies so I can drink it here and there over a few days.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2023-04-06 | ongoing hives across their torso and dark thoughtsongoing hives drove me to some pretty dark thoughts. (Mine were all over my torso, too. It was awful.)In context ↗ | Not stated | |
| 2026-04-03 | first relief from head-blood-flow symptoms on doctor-prescribed giant salt tabletsI finally began getting relief from that when my doc prescribed giant salt tabs. They don't fix the problem entirely, but they help tremendously.In context ↗ | Moderate | Salt, electrolytes and fluids |
| 2026-06-21 | still limited; sits to brush teeth and takes their time so it does not wear them outso I sit down to do it. It's the only way I can keep up with dental hygieneIn context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Mast cell (MCAS) & allergies
ongoing hives drove me to some pretty dark thoughts. (Mine were all over my torso, too. It was awful.)
In context ↗ - Anxiety & low mood
drove me to some pretty dark thoughts
In context ↗ - POTS & dysautonomia
I finally began getting relief from that when my doc prescribed giant salt tabs.
In context ↗