Long COVID
Moderate → no benefit
Long COVID with post-viral symptoms, two days in bed after PEM, still ongoing
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill for
- Not stated
- Last post
- Jun 2025
In their words
- Condition: Long COVID
I'm officially diagnosed with "Post Acute Covid Syndrome with Neurological Manfiestion"
In context ↗ - At worst: Moderate
I showed up, even took my mask off to eat with everyone ... spending the next two days in bed with no lights, no sound
In context ↗ - Now: No benefit
I don't think it's ever completely resolved
In context ↗ - Began after: COVID
post-viral issues from Epstein-Barr that Covid majorly exacerbated
Summary
Dune 20603 has long COVID diagnosed as post-acute Covid syndrome with neurological manifestation, along with EBV-related post-viral problems that Covid worsened. A few medications lessened symptoms after the diagnosis. Attending a wedding last month, mask off to eat, brought two days in bed with no light or sound once PEM set in. They still deal with ongoing post-viral symptoms.
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What they tried
Also tried
a few good meds· Helped
Their words about each treatment
- a few good meds · Helped
after that I was able to get a few good meds to lessen my symptoms
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| onset | Long COVID diagnosed as post-acute Covid syndrome with neurological manifestation; EBV post-viral problems worsened by CovidI'm officially diagnosed with "Post Acute Covid Syndrome with Neurological Manfiestion"In context ↗ | Not stated |
| — | got diagnosis via a neurologist, then a few medications that lessened symptomsafter that I was able to get a few good meds to lessen my symptomsIn context ↗ | Mild |
| last month (reported 2025-06-06) | crashed after attending a wedding and eating with others, two days in bed in the dark and quietShe did not see the cost of that, which was spending the next two days in bed with no lights, no soundIn context ↗ | Severe |
| 2025-06-06 | back up after the wedding crash, still dealing with ongoing post-viral symptomsI don't think it's ever completely resolved.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
any sensory input was too much after the PEM set in
In context ↗ - Light & noise sensitivity
spending the next two days in bed with no lights, no sound, and a washcloth over my face
In context ↗