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ME/CFS Mild → somewhat better

Unable to exercise for years with ME/CFS, somewhat better with TENS vagus stimulation

Condition
ME/CFS
At worst
Mild (working or studying, with limits)
Ill before improving or writing
a few years
Last post
Aug 2024
In their words
  • Condition: ME/CFSwhich is something I haven't been able to do for a few years without breaking down in tears In context ↗
  • At worst: Mildsomething I haven't been able to do for a few years without breaking down in tears In context ↗
  • Now: Somewhat betterIt took a few weeks but I've slowly been able to start exercising again In context ↗
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

Owl 52054 had not been able to exercise for a few years without breaking down in tears. An ear symptom moved from the right ear to both and settled in the left; antibiotics, antihistamines and nasal sprays did nothing. About three months before late August 2024 they began vagus nerve stimulation with a TENS machine and within a few weeks could slowly start exercising again.

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Asking aboutOwl 52054’s story

What they tried

Also tried

Their words about each treatment
  • antibiotics · No changeI had antibiotics, antihistamines, nasal sprays etc but nothing works. In context ↗
  • TENs machine for vagus nerve stimulation · Helped a lotI started using a TENs machine for vagus nerve stimulation about three months ago. It took a few weeks but I've slowly been able to start exercising again In context ↗

Approaches: Vagus nerve stimulation

Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
onsetME/CFS symptoms for a few years, unable to exercisewhich is something I haven't been able to do for a few years without breaking down in tears In context ↗Mild
a few months before June 2024ear symptom flared back at full force after briefly improvingit got so much better that I thought it was finally going away but then it came back at full force In context ↗Mild
2024-08-30slowly able to exercise again after vagus nerve stimulation with a TENS machineIt took a few weeks but I've slowly been able to start exercising again In context ↗MildVagus nerve stimulation

Symptoms mentioned

Their words about their symptoms
  • TinnitusIt started in my right ear, moved to both and now is only in my left ear. In context ↗

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Asking aboutOwl 52054’s story

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