Life as you know it isn't coming back (and that's okay)
- Condition
- Long COVID
- At worst
- Not stated
- Ill before improving
- 4 years
- Published
- Dec 2025
In their words
- Condition: Long COVID
long COVID, which began in March 2020
In context ↗ - Now: Near normal
I say that I am nearly recovered because I still sometimes struggle with vestiges of fear, and this brings on mild symptoms.
In context ↗ - Began after: COVID
long COVID, which began in March 2020
In context ↗
Summary
Amy had long COVID from March 2020 and says recovery began in earnest in 2024, which she partly credits to grief and acceptance work in therapy. She also stopped symptom tracking and came off three MCAS medications, a bumpy stretch before she stabilized. By December 2025 she was nearly recovered, with mild symptoms when fear surfaces, and could take on full-time work and hiking.
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What they tried
What they credit
Also tried
Their words about each treatment
- therapy · Helped
TFG for therapy, I tell you, because this is no easy work and this part took me upwards of three years
In context ↗ - letting go of paper and wearable symptom tracking and Dr Googling · Helped
Letting go of my paper tracking, my wearable tracking, and my Dr. Googling contributed to my recovery
In context ↗ - three MCAS medications (unnamed) · Not said
I recently got off of all three of my MCAS meds
In context ↗ - self-help books (How To Be Sick, The Chronic Illness Workbook, Resting in Presence, Poetry of Presence) · Helped
I recommend a few books that really helped me along that highway
In context ↗ - naming and processing fear, reminding my brain I am safe · Helped
When I realize what's going on and remind my brain of that fact, again the symptoms subside.
In context ↗ - online yoga · Not said
Here he is taking online yoga with me
In context ↗
Approaches: CBT & mindset
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 4.3 years after onset: the story doesn’t say how ill they were before that. 2 steps say too little to place on the scale and are only in the table. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| March 2020 | long COVID beganlong COVID, which began in March 2020In context ↗ | Not stated | |
| sometime in 2024 | recovery began in earnest, after grief and acceptance work in therapyI’d say that didn’t really start in earnest until sometime in 2024.In context ↗ | Moderate | CBT and psychotherapy |
| start of 2025 | about 75% recoveredgoing this year from 75% recovered to near 100%In context ↗ | Mild | |
| recently (before December 2025) | came off all three MCAS meds; bumpy downhill rideI recently got off of all three of my MCAS meds and while that was a bumpy downhill rideIn context ↗ | Not stated | |
| December 2025 | nearly recovered; mild symptoms when fear surfaces; hikes small hillsI say that I am nearly recovered because I still sometimes struggle with vestiges of fear, and this brings on mild symptoms.In context ↗ | Near normal |
Adverse events
- “that was a bumpy downhill ride” In context ↗ Withdrawal problems
Symptoms mentioned
Their words about their symptoms
- Mast cell (MCAS) & allergies
I recently got off of all three of my MCAS meds
In context ↗
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