ME/CFS
Severe → no benefitIll for 4.5 years
Severe, mostly bedbound ME/CFS, with no treatment that has helped
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- 4.5 years
- Last post
- May 2026
In their words
- Condition: ME/CFS
m dealing w cfs since 3 yrs now
In context ↗ - At worst: Severe
I'm severe mostly bedbound
In context ↗ - Now: No benefit
nothing has helped me so far
In context ↗
Summary
A Reddit user who has had ME/CFS since about 2021 posted in September 2024 that nothing had helped and their life had been miserable, and asked for a doctor who could help. Low-dose naltrexone and Mestinon did not work for them. By May 2026 they described themselves as severe and mostly bedbound, with no treatment that had helped.
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What they tried
Also tried
Their words about each treatment
- LDN · No change
(LDN and mestinon didn't work for me)
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| 2021 (about) | ME/CFS beganm dealing w cfs since 3 yrs nowIn context ↗ | Not stated |
| 2026-05-24 | still severe, mostly bedboundI'm severe mostly bedboundIn context ↗ | Severe |