Long COVID post-exertional crashes; thought recovered then crashed, work tolerance gain
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- Not stated
- Last post
- Apr 2026
In their words
- Condition: Long COVID
Still the same symptoms and limitations, I just know how to navigate around my illness better than when this first started
In context ↗ - At worst: Mild
The only thing I can say has truly improved is my ability to work without triggering my flare ups.
In context ↗ - Now: Relapsed
This makes it sometimes seem like I'm better but I'm not. Still the same symptoms and limitations
In context ↗
Summary
They described an illness with post-exertional crashes. After thinking they had recovered and ramping up activity, they crashed hard. By April 2026 they said only their ability to work without triggering flare-ups had improved, while the same symptoms and limitations remained and they did not consider themselves better. The gain was in navigating the illness rather than in reducing the underlying symptoms.
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What they tried
What they credit
Also tried
Their words about each treatment
- ramping up my activity · Much worse
I thought I had recovered and began ramping up my activity again, then I crashed back down and crashed hard
In context ↗ - navigate around my illness · Helped
I just know how to navigate around my illness better than when this first started so it gets in the way less often
In context ↗
Approaches: Pacing
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| — | illness first startedwhen this first startedIn context ↗ | Not stated |
| 2026-01-25 | crashed hard after ramping up activityI thought I had recovered and began ramping up my activity again, then I crashed back down and crashed hard.In context ↗ | Not stated |
| 2026-04-23 | able to work without triggering flare-ups, but symptoms and limitations remainThe only thing I can say has truly improved is my ability to work without triggering my flare ups.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I thought I had recovered and began ramping up my activity again, then I crashed back down and crashed hard.
In context ↗
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