ME/CFS
Outcome unclear
ME/CFS with vertigo and post-exercise exhaustion, trying L-citrulline and pseudoephedrine
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- Not stated
- Last post
- Feb 2025
In their words
- Condition: ME/CFS
I have been diagnosed with Fibromyalgia, CFS, and Ehlers-Danlos.
In context ↗ - At worst: Mild
When I haven’t taken it in the past I would have to sleep off my exhaustion after working out for 45-60 minutes.
In context ↗
Read from 7 of their posts and comments; links to the 5 this page draws on
Summary
A Reddit user with CFS, fibromyalgia and Ehlers-Danlos, working from home on their own schedule, described long-standing vertigo and needing to sleep off exhaustion after 45-60 minutes of exercise. L-citrulline, taken before workouts and in the afternoon, let them exercise regularly for almost two years; pseudoephedrine at certain times of year made them feel basically the same way as pred. An unnamed medication, taken for several months with two dose increases, had no noticeable effect.
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What they tried
Also tried
L Citrulline Capsules 1,200mg Per Serving· HelpedPseudoephedrine· Helpedawareness of hydration, posture/neck tension and blood sugar· HelpedLow-dose naltrexone· No changeMeclizine· Not saidbenadryl· Not saidibuprofen· Not saidflexeril· Not saidice packs, eye masks and foam rollers· Not saidnaps· Not said
Their words about each treatment
- L Citrulline Capsules 1,200mg Per Serving · Helped
This is what I take. I take 8 prior to a workout and then 2 or 3 on off-mornings as well as in the afternoon when I am slumping. ... I’ve had good results for almost 2 years with it.
In context ↗ - Pseudoephedrine · Helped
Certain times of the year when I’m dosed up on pseudoephedrine I feel basically the same way.
In context ↗ - Meclizine · Not said
I use meclizine, benadryl, ice packs, ibuprofen, flexeril, eye masks, naps and foam rollers to alleviate symptoms.
In context ↗ - awareness of hydration, posture/neck tension and blood sugar · Helped
I have learned that at least for me, I’ve been able to manage it through awareness of my hydration, my posture/ neck tension, and my blood sugar.
In context ↗ - Low-dose naltrexone · No change
I took it for several months and had my does upped twice. Never could tell it had any effect.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| — | CFS, fibromyalgia and Ehlers-Danlos; vertigo for many yearsI have been diagnosed with Fibromyalgia, CFS, and Ehlers-Danlos.In context ↗ | Not stated |
| 2021-06-05 | able to work out regularly without sleeping off exhaustion afterwardsThe supplement just allows me to have the extra energy to work out regularly without the typical side effect!In context ↗ | Mild |
| 2025-02-03 | still working from home; low-dose naltrexone had no effectI am lucky to work from home on my own schedule where I can come and go as I like. ... Never could tell it had any effect. | Mild |
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
Vertigo has been a consistent symptom of mine for many years.
In context ↗