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ME/CFS Outcome unclear

ME/CFS with cold/flu symptoms; CBT improved anxiety, not physical symptoms

Condition
ME/CFS
At worst
Not stated
Ill for
Not stated
Last post
Oct 2019
In their words
  • Condition: ME/CFSas all it did was show a million results on how flu symptoms were a part of cfs In context ↗
Read from 6 of their posts and comments; links to the 6 this page draws on

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Summary

Hill 12847 described CFS with cold/flu symptoms, including a sore throat, and travel fatigue. Years of therapy, including CBT through BetterHelp, improved anxiety and coping but not physical symptoms. They took Ritalin for ADHD-related executive function and found protein helped only when diet was deficient. No recovery was reported.

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What they tried

Their words about each treatment
  • meds given for misdiagnosed bipolar disorder · Much worseI was given meds that make you suicidal and then hospitalised twice as a teenager for a problem they essentially caused In context ↗
  • therapy · HelpedStill was mentally better than before the terrible things started happening ... it can only help you deal with your symptoms in a better way emotionally and thought-wise imo, and not remove the actual symptoms In context ↗
  • ADHD medication / ritalin · Helpedritalin gang represent. the executive function with them needs to be learned but at least one can be sentient enough to try doing what needs to be done! In context ↗
  • ginger tea with honey and lemon · Helpedstrong ginger tea with copious honey and a little lemon helps mildly soothe a sore throat In context ↗
  • soy milk and other protein sources · Helpedsoy milk is a complete protein- and helps me a lot as a vegan ... sufficient protein wont fix anything, but insufficient nutrition will make things worse In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedAfter
—CFS with cold/flu symptomshow flu symptoms were a part of cfs In context ↗
2019-07-22Therapy improved anxiety and coping; physical symptoms remainedStill was mentally better than before the terrible things started happening. ... there are undeniable physical symptoms. In context ↗CBT and psychotherapy

Adverse events

  • “I was given meds that make you suicidal and then hospitalised twice as a teenager for a problem they essentially caused.” In context ↗ Suicidal thoughts or attempt
  • “I was given meds that make you suicidal and then hospitalised twice as a teenager for a problem they essentially caused.” In context ↗ Hospitalisation
  • CBT and psychotherapy“actually due to ptsd from mental health pros” In context ↗ Mood or psychiatric effects

Symptoms mentioned

Their words about their symptoms
  • Flu-like symptomsstrong ginger tea with copious honey and a little lemon helps mildly soothe a sore throat, in my experience (both from cfs and a cold i imagine) In context ↗
  • Anxiety & low moodhelp with being present and less anxious In context ↗

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