ME/CFS
Moderate → no benefit
Housebound with ME/CFS; stopped Vyvanse, diet and sleep routine didn't help
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- Not stated
- Last post
- Sep 2023
In their words
- Condition: ME/CFS
I'm starting to accept that I have chronic fatigue
In context ↗ - At worst: Moderate
I guess that I'll be housebound for a lot of the rest of my life
In context ↗ - Now: No benefit
I'm still as of this time, living in hope.
In context ↗ - Began after: stress or burnout
caused from cptsd, adhd and heavily suspected asd (lvl 1)
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
In September 2023 the user wrote they were starting to accept they had chronic fatigue, which they put down to CPTSD, ADHD, suspected autism, burnout and two long psychoses. They expected to be housebound for much of the rest of their life unless something changed. They stopped the stimulant Vyvanse after about five weeks because they hated it, and a low-GI, high-protein diet and healthy sleep routine had not helped.
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What they tried
Also tried
Their words about each treatment
- Vyvanse · Worse
I've only just started trialing Vyvanse but have since gone off of it after about 5 weeks use as I hate it
In context ↗ - low-GI, high protein and vegetables · No change
Eating low-GI, high protein and vegetables isn't doing it
In context ↗ - healthy sleep routine · No change
Eating low-GI, high protein and vegetables isn't doing it, as well as a healthy sleep routine
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| — | chronic fatigue began, attributed to CPTSD, ADHD, suspected autism and burnoutcaused from cptsd, adhd and heavily suspected asd (lvl 1)In context ↗ | Not stated |
| 2023-09-11 | housebound, still hoping to recover some energyI guess that I'll be housebound for a lot of the rest of my lifeIn context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Anxiety & low mood
Two long-term psychoses that were also competing with burnout
In context ↗