ME/CFS so exhausting they lay on the floor, somewhat better with LDN and infection treatment
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- Mar 2026
In their words
- Condition: ME/CFS
the underlying infection that caused my CFS in the first place
In context ↗ - At worst: Severe
there are some days i just lie on the floor because im too exhausted to even hold my body up
In context ↗ - Now: Somewhat better
one thing that sort of has helped me is low dose naltrexone and treating the underlying infection that caused my CFS in the first place. but it’s a temporary fix :/
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Vale 67596 had CFS that began after an infection whose type they did not name, with days so exhausting they lay on the floor unable to hold their body up, a sense of doom and gloom, and doctors who did not know what to do. Low-dose naltrexone, along with treating the underlying infection, helped somewhat, but they described it as only a temporary fix.
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What they tried
What they credit
Also tried
Their words about each treatment
- low dose naltrexone · Helped
one thing that sort of has helped me is low dose naltrexone and treating the underlying infection that caused my CFS in the first place. but it’s a temporary fix :/
In context ↗ - treating the underlying infection · Helped
treating the underlying infection that caused my CFS in the first place. but it’s a temporary fix
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| onset | CFS began after an infectiontreating the underlying infection that caused my CFS in the first placeIn context ↗ | Not stated | |
| — | days too exhausted to hold their body up, lying on the floorthere are some days i just lie on the floor because im too exhausted to even hold my body upIn context ↗ | Severe | |
| 2026-03-30 | low dose naltrexone and treating the underlying infection helped somewhat, temporarilyone thing that sort of has helped me is low dose naltrexone and treating the underlying infectionIn context ↗ | Moderate | Low-dose naltrexone |
Symptoms mentioned
Their words about their symptoms
- Muscle weakness
too exhausted to even hold my body up
In context ↗ - Anxiety & low mood
there’s a sense of doom and gloom about it for sure
In context ↗
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