10 years of ME/CFS with disabling fatigue and crashes, nearly back to normal on Dupixent
- Condition
- ME/CFS
- At worst
- Not stated
- Ill before improving or writing
- 10 years
- Last post
- Aug 2024
In their words
- Condition: ME/CFS
Dupixent has completely suppressed my 10-year long battle with CFS/ME!
In context ↗ - Now: Near normal
Dupixent has completely suppressed my 10-year long battle with CFS/ME! If not 100%, at least 95%. Can exercise and run like I did 10 years ago.
In context ↗
Summary
They had CFS/ME for 10 years, with disabling fatigue and exercise intolerance; running half a mile caused a crash and 2-3 days bedridden. Dupixent, prescribed for an unrelated issue, suppressed symptoms by at least 95% in about a week, and they could run 5 miles a day with PEM gone. The effect depended on continuing Dupixent.
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What they tried
What they credit
Their words about each treatment
- Dupixent · Helped a lot
Dupixent has completely suppressed my 10-year long battle with CFS/ME! If not 100%, at least 95%.
In context ↗
Approaches: Biologics & antibodies
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 10 years after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| onset | CFS/ME began10-year long battle with CFS/MEIn context ↗ | Not stated |
| before Dupixent | disabling fatigue and exercise intolerance; half-mile run caused 2-3 days bedriddenBefore dupixent, running 1/2 mile would have crashed my body and I would have been bedridden for 2 to 3 days.In context ↗ | Moderate |
| 2024-03-06 | Dupixent suppressed CFS/ME symptoms and restored exercise toleranceDupixent has completely suppressed my 10-year long battle with CFS/ME! ... Can exercise and run like I did 10 years ago.In context ↗ | Near normal |
| 2024-08-22 | running 5 miles a day, PEM gone, still on DupixentI am able to run 5 miles per day and feel great!In context ↗ | Near normal |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
Post Exertional Malaise/Exercise Intolerance is GONE.
In context ↗
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