Long COVID
Moderate → no benefit
Long COVID with chronic migraines, about 17 migraine days a month, still unable to work
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill for
- Not stated
- Last post
- Sep 2024
In their words
- Condition: Long COVID
I also now suffer from LC and POTS.
In context ↗ - At worst: Moderate
I couldn't work anymore and had to quit my job last summer, 2023.
In context ↗ - Now: No benefit
I now suffer from chronic migraines that are both resistant to medication and longer lasting.
In context ↗
Summary
Tide 80592 has long COVID with POTS and chronic migraines, averaging about 17 migraine days a month along with migraine hangovers and vision issues. Their migraines became chronic after a first COVID vaccine dose. No longer able to work, they quit their job in summer 2023, then paused appointments for a few months over winter, which they felt helped some, before returning to testing and specialists.
Ask Miruvor AI
What they tried
Also tried
Their words about each treatment
- pause on doctor appointments and decompress · Helped
just stop thinking about LC, put a pause on doctor appointments, and just decompress. I think it helped some
In context ↗ - eye drops · Helped
I also found eye drops to be helpful.
In context ↗ - antibiotics · Helped
It went away, but I needed to be on antibiotics and steroids.
In context ↗ - COVID vaccination as treatment · Worse
almost 36 hours exactly after my first COVID vax, I got one of the worst migraines in my life, and it's been hell ever since
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | long COVID with POTS, plus lifelong chronic migrainesNot to mention I also now suffer from LC and POTS.In context ↗ | Not stated |
| after first COVID vaccine | first COVID vaccine triggered one of the worst migraines of their lifealmost 36 hours exactly after my first COVID vax, I got one of the worst migraines in my life, and it's been hell ever since.In context ↗ | Not stated |
| summer 2023 | quit job because of migraines and long COVIDI couldn't work anymore and had to quit my job last summer, 2023.In context ↗ | Moderate |
| winter 2023-2024 | paused doctor appointments and decompressed for a few monthsI had to take a handful of months this past winter to just stop thinking about LC, put a pause on doctor appointments, and just decompress. I think it helped someIn context ↗ | Moderate |
| 2024-09-21 | back to testing and specialists; still chronic migraines, LC and POTS, not workingI now average about 17 days a month with migraine.In context ↗ | Moderate |
Adverse events
- COVID vaccination as treatment“almost 36 hours exactly after my first COVID vax, I got one of the worst migraines in my life, and it's been hell ever since” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Headaches & migraine
I now average about 17 days a month with migraine.
In context ↗ - POTS & dysautonomia
Not to mention I also now suffer from LC and POTS.
In context ↗ - Vision problems
I usually have a "migraine hangover" and vision issues.
In context ↗ - Flu-like symptoms
I also had bad fevers, chills, and muscle weakness
In context ↗