ME/CFS
Outcome unclear
Weak, dizzy and dehydrated with ME/CFS; raised bed head helps, still weak
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Jan 2020
In their words
- Condition: ME/CFS
I'm still weak, dizzy, dehydrated so stopping the monthly isn't going to make an impact on the dysautonomia symptoms
In context ↗
Summary
A person on r/cfs with dysautonomia described feeling weak, dizzy and dehydrated. On their cardiologist's advice they raised the head of their bed 8 to 12 inches, which they said really helps by making their body produce less urine when in bed. They used the pill to stop their periods and said life is good, though they were still weak, dizzy and dehydrated. They reported that lipoic acid made them feel bad for days.
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What they tried
Also tried
Their words about each treatment
- Bed lifts (whole-bed tilt) · Helped
My cardiologist recommend this solution and it really helps.
In context ↗ - the pill · Helped
I no longer have periods due to the pill and life is good!
In context ↗ - Lipoic acid · Worse
Lipoic acid kills me for days
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| 2018-12-22 | raised head of bed 8-12 inches for night urination, said it helpsMy cardiologist recommend this solution and it really helps.In context ↗ |
| 2019-05-05 | hormonal pill stopped periods, still weak and dizzyI no longer have periods due to the pill and life is good!In context ↗ |
| 2020-01-12 | lipoic acid caused days of feeling awfulLipoic acid kills me for daysIn context ↗ |
Adverse events
- Alpha-lipoic acid (ALA, R-ALA)“Lipoic acid kills me for days” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
I'm still weak, dizzy, dehydrated so stopping the monthly isn't going to make an impact on the dysautonomia symptoms
In context ↗ - Muscle weakness
I'm still weak, dizzy, dehydrated
In context ↗