Long COVID
Mild → somewhat betterNeeds ongoing treatment
Long COVID head pressure and migraines somewhat better after finding histamine sensitivity
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- Not stated
- Last post
- Jun 2024
In their words
- Condition: Long COVID
r/covidlonghaulers
In context ↗ - At worst: Mild
It’s making perform poorly at my job and I don’t really want to lose it.
In context ↗ - Now: Somewhat better
Better. Found the pressure was from histamine sensitivity so I’m managing that.
In context ↗
Read from 8 of their posts and comments; links to the 7 this page draws on
Summary
Glacier 96730 has long COVID, with strong head pressure when concentrating that threatened their job, plus headaches and migraines. Gabapentin did nothing and lion's mane seemed to help. Low-dose naltrexone gave them a low fever then bad anxiety from 2 mg, so they stopped it. By mid-2024 they felt better after finding the pressure came from histamine sensitivity, and were managing that and anxiety.
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What they tried
Also tried
Their words about each treatment
- gabapentin · No change
I went to a neurologist who gave me gabapentin and I took that for a week and didn’t help.
In context ↗ - lions mane · Helped
I’ve been taking lions mane for a few weeks and that seems to be helping.
In context ↗ - magnesium · No change
I have tried everything. Low histamine diet, anti histamines, magnesium, quercetin, B2 vitamin, hydrosizine and more. Nothing seems to help
In context ↗ - turmeric · Not said
Other things I’ve been taking is magnesium and turmeric.
In context ↗ - exercise · Helped
I often feel better after I exercise
In context ↗ - low dose naltrexone · Worse
Been having a low fever for 2 days now since I started this medicine. ... This gave me really bad anxiety starting at 2mg. I had to stop it. Didn’t work for me.
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 3 months after onset: the story doesn’t say how ill they were before that. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2023-04-27 | lions mane seemed to help the head pressure; still workingI've been taking lions mane for a few weeks and that seems to be helpingIn context ↗ | Mild |
| 2024-06-05 | pressure better after finding histamine sensitivity; anxiety managedBetter. Found the pressure was from histamine sensitivity so I’m managing that.In context ↗ | Mild |
Adverse events
- Low-dose naltrexone“Been having a low fever for 2 days now since I started this medicine.” In context ↗ Side effects
- Low-dose naltrexone“This gave me really bad anxiety starting at 2mg. I had to stop it. Didn’t work for me.” In context ↗ Mood or psychiatric effects
Symptoms mentioned
Their words about their symptoms
- Headaches & migraine
It’s a strong head pressure in my forehead.
In context ↗ - Anxiety & low mood
Then I also had anxiety that was giving me other types of headaches so managing that as well.
In context ↗ - Mast cell (MCAS) & allergies
Found the pressure was from histamine sensitivity so I’m managing that.
In context ↗ - Heart symptoms & palpitations
It gave me heart palpitations.
In context ↗