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ME/CFS Mild → no benefit

ME/CFS fatigue and PEM from deep breathing, no benefit from Prozac or Abilify

Condition
ME/CFS
At worst
Mild (working or studying, with limits)
Ill for
Not stated
Last post
Oct 2023
In their words
  • Condition: ME/CFSI can’t do deep breathing either, it triggers PEM In context ↗
  • At worst: Mildthe first day I took the higher dose I had to leave work because I could not stay awake In context ↗
  • Now: No benefitI can’t do deep breathing either, it triggers PEM In context ↗
Read from 3 of their posts and comments; links to the 3 this page draws on

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Summary

Quail 16342 wrote in r/cfs that they became ill and their doctor told them they were depressed; Prozac and Abilify worsened their fatigue, and the first day on a higher Abilify dose they had to leave work because they could not stay awake, and stopping it lessened their symptoms. They get PEM from deep breathing, and suggested light-filtering screen covers, yellow glasses and audiobooks for screen intolerance.

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What they tried

Also tried

yellow colored glasses· HelpedProzac· WorseAbilify· Worse
Their words about each treatment
  • Prozac · Worsethey put me on Prozac and Abilify and the fatigue became worse In context ↗
  • Abilify · Worseit was definitely the Abilify making it worse In context ↗
  • yellow colored glasses · HelpedI got a pair of yellow colored glasses and those helped In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
—became ill; doctor said they were depressed and sent them to a psychiatristWhen I first became ill and my doctor couldn’t figure out what was wrong with me she told me that I was depressed In context ↗Mild
—fatigue worse on Prozac and Abilify; left work after the Abilify dose was raisedthey put me on Prozac and Abilify and the fatigue became worse In context ↗Mild
—stopping Abilify lessened symptom severityStopping the Abilify lessened the severity of my symptoms In context ↗Mild
2023-10-09still gets PEM from deep breathing; manages screen intolerance with filters, yellow glasses and audiobooksI can’t do deep breathing either, it triggers PEM In context ↗Mild

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseI can’t do deep breathing either, it triggers PEM In context ↗
  • Light & noise sensitivityI had the same problem and found out they make light filtering screen covers for cell phones and tablets In context ↗

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