ME/CFS
Moderate → no benefit
Housebound with ME/CFS, no improvement, credits acceptance for restarting life
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- Not stated
- Last post
- Jun 2020
In their words
- Condition: ME/CFS
I hate my CFS but I don't hate my life.
In context ↗ - At worst: Moderate
Once I accepted that I am house bound for the foreseeable future
In context ↗ - Now: No benefit
Changing from hoping to get better to hoping to happy with cfs is what helped for me.
In context ↗
Summary
Tulip 38445 describes having CFS and being housebound for the foreseeable future. They found caffeine and modafinil very helpful when they timed and took them right, but said the crashes were awful when they got it wrong. In 2020 they said accepting being housebound let them restart their life, and that shifting from hoping to get better to hoping to be happy with CFS helped.
Ask Miruvor AI
What they tried
Also tried
Their words about each treatment
- caffeine · Helped
caffeine and modafinil very helpful. When I do it wrong the crashes are awful though.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were | After |
|---|---|---|---|
| — | living with CFSI hate my CFS but I don't hate my life.In context ↗ | Not stated | |
| 2019-05-18 | caffeine and modafinil helpful when timed wellcaffeine and modafinil very helpfulIn context ↗ | Not stated | Modafinil / armodafinil |
| 2020-06-07 | housebound; acceptance helped outlookChanging from hoping to get better to hoping to happy with cfs is what helped for me.In context ↗ | Moderate |
Adverse events
- Modafinil / armodafinil“caffeine and modafinil ... When I do it wrong the crashes are awful though.” In context ↗ Made symptoms worse