Bedbound with long COVID, now much better after high-dose aspirin
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 2 years
- Last post
- Oct 2026
In their words
- Condition: Long COVID
I’ve only had long covid for 4 months
In context ↗ - At worst: Severe
After starting high dose aspirin, I went from being bed bound to 50% energy within a day.
In context ↗ - Now: Much better
I can now do mild to moderate activity, like long hikes or an hour of paddling on the lake. Incline is still too taxing on my system as is hot weather.
In context ↗ - Began after: COVID
there are tiny clots in your blood due to Covid that makes it hard for the oxygen to get delivered
Read from 9 of their posts and comments; links to the 6 this page draws on
Summary
This person's long COVID began in July 2024 and worsened to bed bound with about 5% energy, barely able to climb one flight of stairs. High-dose aspirin, 650 mg every four hours, raised energy to roughly 50% within a day, and the dose was later reduced to 650 mg daily. By 2026 they could manage long hikes and an hour of paddling, though incline, heat and PEM still limited them and they still planned down days.
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What they tried
What they credit
Their words about each treatment
- high dose aspirin · Helped a lot
the high dose aspirin is the only thing that made a huge difference for me
In context ↗ - nattokinase · Not said
along with things like nattokinase, omega 3, NAC
In context ↗ - pacing · Helped
keeps PEM manageable for me, but I still plan one down day for every day of moderate activity.
In context ↗ - creatine · Helped
5mg creatine daily (double on high intensity days and after for a few days)
In context ↗ - custom electrolytes · Helped
custom electrolytes- sodium, iodine, magnesium malate, potassium chloride, taurine, sugar, true lemon crystallized lemon, trace minerals
In context ↗ - Beta blocker · Helped
Beta blocker helped me.
In context ↗
Approaches: H1 antihistamines · H2 blockers · POTS medication · Anticoagulants · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 3 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| July 2024 | long COVID began; repeated unsuccessful doctor visitsAfter unsuccessful doctor visits since July 2024, I’ve tried to learn as much as possible about long covid.In context ↗ | Not stated |
| October 2024 | bed bound at about 5% energy after a small exertion; could barely climb one flight of stairsmy fatigue increased significantly where it was hard to walk up one flight of stairsIn context ↗ | Severe |
| 2024-10-17 | high-dose aspirin raised energy from bed bound to about 50%; able to work remotely and do basicsAfter starting high dose aspirin, I went from being bed bound to 50% energy within a day.In context ↗ | Moderate |
| 2026-10-22 | increasingly better over two years; can do long hikes and an hour of paddling but inclines, heat and PEM still limitI can now do mild to moderate activity, like long hikes or an hour of paddling on the lake. Incline is still too taxing on my system as is hot weather.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
keeps PEM manageable for me, but I still plan one down day for every day of moderate activity
In context ↗ - Temperature regulation
my feet got increasing more warm. I no longer have them in a heating pad 24/7
In context ↗
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