Long COVID with seizures, not well enough to work normally, much better after L-Carnitine
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 3 years
- Last post
- Oct 2024
In their words
- Condition: Long COVID
I got Covid and was realllly sick from it, and it all just spiraled from there.
In context ↗ - At worst: Moderate
I’ve resigned from 2 jobs in 3 years now. Not well enough to work normally.
In context ↗ - Now: Much better
Try L-Carnitine. It has been absolutely life changing for me.
In context ↗ - Began after: a vaccination
I got the J&J vaccine and almost immediately started having seizures and then heart problems and blood clotting issues
In context ↗
Summary
After the J&J vaccine they had two major seizures within a week, then heart problems and blood clotting issues; Covid five weeks later made everything spiral. By May 2024 they had resigned two jobs in three years and were not well enough to work normally. In October 2024 they called L-Carnitine "absolutely life changing" but did not say how much their function improved.
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What they tried
What they credit
Their words about each treatment
- L-Carnitine · Helped a lot
Try L-Carnitine. It has been absolutely life changing for me.
In context ↗
Approaches: Amino acids and carnitine
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were | After |
|---|---|---|---|
| onset | seizures and heart problems began within a week of the J&J vaccineI got the J&J vaccine and almost immediately started having seizures and then heart problems and blood clotting issuesIn context ↗ | Not stated | |
| 5 weeks after vaccination | got Covid and got much sickerthen 5 weeks after my vax I got Covid and was realllly sick from it, and it all just spiraled from thereIn context ↗ | Not stated | |
| May 2024 | not well enough to work, resigned two jobsI’ve resigned from 2 jobs in 3 years now. Not well enough to work normally.In context ↗ | Moderate | |
| October 2024 | reported L-Carnitine as life changingTry L-Carnitine. It has been absolutely life changing for me.In context ↗ | Not stated | L-carnitine |
Symptoms mentioned
Their words about their symptoms
- Heart symptoms & palpitations
then heart problems and blood clotting issues
In context ↗ - Anxiety & low mood
my anxiety (which I only had because I had just experienced two terrifying seizures!)
In context ↗
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