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Long COVID Moderate → somewhat betterNeeds ongoing treatment

Long COVID symptoms bad enough to stop work, now somewhat better with H1/H2 blockers

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
Not stated
Last post
Sep 2025
In their words
  • Condition: Long COVIDafter I had similar symptoms after having covid (had preexisting hEDS and POTS) In context ↗
  • At worst: ModerateI still can’t even work, but I can at least sort of function and take care of my kids. In context ↗
  • Now: Somewhat betterI was really surprised how much H1 and H2 blockers, and a low histamine diet turned the worst of the symptoms around within a week or two ... I still can’t even work, but I can at least sort of function and take care of my kids.
  • Began after: COVIDafter having covid
Read from 3 of their posts and comments; links to the 3 this page draws on

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Summary

Beech 61173 had COVID-19 and developed symptoms they treated as MCAS with H1 and H2 blockers and a low histamine diet, which turned the worst symptoms around within a week or two. They had pre-existing POTS and hEDS, use 14 mg nicotine for 12 hours on some days, and by September 2025 were on six prescription medicines, several supplements and weekly saline infusions; they could not work but could at least sort of function and care for their kids.

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What they tried

Also tried

6 prescription meds· Helpedsupplements· Helpednicotine· Not said3 over the counter meds· Not saidsaline infusions· Not saiddietary changes· Not saidlifestyle changes· Not said
Their words about each treatment
  • H1 blockers · HelpedI was really surprised how much H1 and H2 blockers, and a low histamine diet turned the worst of the symptoms around within a week or two In context ↗
  • nicotine · Not saidI don’t use it every day, but I use 14mg for 12 hours when I do, and I don’t get any noticeable symptoms In context ↗
  • 6 prescription meds · HelpedTwo of my prescriptions meds and a couple of my supplements are for those exact things ... I can’t function without them! In context ↗
  • 3 over the counter meds · Not saidI’m currently on 6 prescription meds, 3 over the counter meds, between 3-8 supplements depending on where I’m at In context ↗
  • saline infusions · Not saidand once a week saline infusions In context ↗
  • dietary changes · Not saidalong with dietary changes, lifestyle changes In context ↗

Approaches: H1 antihistamines · H2 blockers · Diet

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedWhere they wereAfter
onsetCOVID-19 followed by lingering symptomsI had similar symptoms after having covid In context ↗Not stated
—worst of the symptoms turned aroundI was really surprised how much H1 and H2 blockers, and a low histamine diet turned the worst of the symptoms around within a week or two In context ↗Not statedH1 antihistamines (unspecified)
2025-09-24on many medicines and weekly infusions, unable to work but able to care for their kidsI still can’t even work, but I can at least sort of function and take care of my kids In context ↗Moderate

Symptoms mentioned

Their words about their symptoms
  • POTS & dysautonomiahad preexisting hEDS and POTS In context ↗
  • Mast cell (MCAS) & allergiesI had similar symptoms after having covid In context ↗

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