CFS post-exertional crashes, no overall improvement; tried amitriptyline and Pocari Sweat
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- Not stated
- Last post
- Oct 2025
In their words
- Condition: ME/CFS
It's been an absolute lifesaver when I'm having a CFS/ME flare up
In context ↗ - At worst: Mild
When I visited Japan I drank 'Pocari Sweat' and it helped me so much with avoiding crashing.
In context ↗ - Now: No benefit
She screams at me if I've overdone it and need to rest, literally follows me around yelling until I give in and go to bed.
In context ↗
Read from 4 of their posts and comments; links to the 4 this page draws on
Summary
Osprey 89621, a UK r/cfs member, described CFS with post-exertional crashes and noted amitriptyline can help GI issues like IBS; they gave no onset date. A 2019 hospital stay on IV antibiotics and fluids left them free of CFS symptoms, which returned after they went home. Amitriptyline helped once they adjusted past shaky, sleepy early months. They describe crashes/flare-ups and use imported Pocari Sweat, a 'lifesaver' they called slightly expensive.
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What they tried
Also tried
Their words about each treatment
- Amitriptyline · Helped
Took me quite a long time to adjust to it, first few months I was completely out of it during the day ... but once it settled it's been great.
In context ↗ - Pocari Sweat · Helped
It's been an absolute lifesaver when I'm having a CFS/ME flare up, though it is slightly expensive.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 3 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2019 | hospital stay on IV antibiotics and fluids; felt no CFS symptomsI had a hospital stay last year and was on a constant IV of antibiotics and fluids and I’d never felt so great in my life.In context ↗ | Not stated |
| after leaving hospital | CFS symptoms returned after going homeUpon leaving hospital and coming home the cfs symptoms began crawling back to me.In context ↗ | Not stated |
| before August 2020 | first months on amitriptyline: shaky, sleepy, needed help with everythingfirst few months I was completely out of it during the day, and needed help with everything because I was shaky and wobbly and kept falling asleepIn context ↗ | Not stated |
| 2020 | amitriptyline settled and was helpingbut once it settled it's been greatIn context ↗ | Mild |
| 2025-10-31 | still crashes after overdoing it and rests in bedShe screams at me if I've overdone it and need to rest, literally follows me around yelling until I give in and go to bed.In context ↗ | Mild |
Adverse events
- Amitriptyline (Elavil)“first few months I was completely out of it during the day, and needed help with everything because I was shaky and wobbly and kept falling asleep” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
if I've overdone it and need to rest
In context ↗ - Gut problems
my doctor recommended me to take it daily as it can help with any gastro-intestinal issues like IBS too
In context ↗