Ill with ME/CFS from teens, collapsing after chores, now much better and working from home
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 29 years
- Last post
- May 2021
In their words
- Condition: ME/CFS
Also remember, brain fog is real, your thoughts might be skewed now due to the nature of this illness
In context ↗ - At worst: Moderate
I remember being made to wash floors and collapsing afterwards
In context ↗ - Now: Much better
I WAS FINE MANY MANY TIMES, FOR LONG STRETCHES OF TIME. I'm now married, to kids and I work from home.
In context ↗
Summary
Lake 20674 started being unwell at 18 and was 47 when they wrote, so had been ill about 29 years, with long stretches of feeling fine in between. As a teenager their parents took their illness for depression and set chores; they collapsed after washing floors. They are now married with children and work from home, and say they have had many happy times but will never be completely right again.
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What they tried
What they credit
Also tried
Their words about each treatment
- chores / moving · Worse
I remember being made to wash floors and collapsing afterwards
In context ↗ - no wheat or sugar, meat · Helped
wheat and sugar totally no no for me. however it depends. meat makes me feel better
In context ↗ - time · Helped
I WAS FINE MANY MANY TIMES, FOR LONG STRETCHES OF TIME.
In context ↗
Approaches: Diet
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| age 18 | started being unwellI started being unwell at 18In context ↗ | Not stated |
| teenage years | collapsed after being made to wash floorsI remember being made to wash floors and collapsing afterwardsIn context ↗ | Moderate |
| — | long stretches of being fineI WAS FINE MANY MANY TIMES, FOR LONG STRETCHES OF TIME.In context ↗ | Near normal |
| 2021-05-06 | married with kids and working from home, never completely right againI'm now married, to kids and I work from home.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I remember being made to wash floors and collapsing afterwards
In context ↗
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