ME/CFS
Moderate → no benefitIll for 5 years
Extremely fatigued with ME/CFS, sleeping 14-16 hours a day, no improvement from TMS
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- 5 years
- Last post
- Jul 2025
In their words
- Condition: ME/CFS
done every blood test my doctor can think of and she just now thinks it’s CFS but she’s ordered a brain MRI so waiting on that
In context ↗ - At worst: Moderate
since november i’ve been extremely fatigued, sleeping probably like 14-16 hours a day
In context ↗ - Now: No benefit
after ending TMS in june i’ve gone back to sleeping too much again
In context ↗ - Began after: glandular fever or EBV
got mono 5 years ago
- Says they never had: Post-exertional malaise
i don’t really identify with PEM
Read from 2 of their posts and comments; links to the one this page draws on
Summary
Wave 74743, a 23-year-old man, had fatigue on and off since glandular fever five years earlier, then became extremely fatigued after COVID in June 2024, sleeping 14-16 hours a day from November. A two-month course of TMS in April-May 2025 reduced his sleep and made him feel more like a person, but after it ended in June he was sleeping too much again. He had orthostatic hypotension and was tapering Zoloft with no change.
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What they tried
Also tried
Their words about each treatment
- zoloft · No change
currently trying to ween off of zoloft and see if that does anything, on 50mg now down from 100 but nothing has changed
In context ↗ - TMS · Helped
did TMS in april and may and suddenly started sleeping not enough, waking up multiple times in the night and up pretty early but it helped with feeling more like a person i guess
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2020 | fatigue on and off after glandular fever, long naps most dayshad fatigue issues on and off for the past 5 years at leastIn context ↗ | Mild | |
| June 2024 | COVID, exhausted for two monthsgot covid last june, pretty exhausted june & julyIn context ↗ | Moderate | |
| September 2024 | Europe trip, felt mostly good and very activewent to europe september & october and felt mostly good and was very activeIn context ↗ | Near normal | |
| late October 2024 | crashed in the last two weeks of the tripcrashed in the last 2 weeks and was very fatiguedIn context ↗ | Moderate | |
| November 2024 | extremely fatigued, sleeping 14-16 hours a daysince november i’ve been extremely fatigued, sleeping probably like 14-16 hours a dayIn context ↗ | Moderate | |
| April-May 2025 | TMS course, slept less and felt more like a persondid TMS in april and may and suddenly started sleeping not enough ... it helped with feeling more like a person i guessIn context ↗ | Mild | rTMS (transcranial magnetic stimulation) |
| June 2025 | back to oversleeping after TMS endedafter ending TMS in june i’ve gone back to sleeping too much againIn context ↗ | Moderate | |
| 2025-07-15 | still constantly tiredi’m so sick of being tired all the damn timeIn context ↗ | Moderate |
Adverse events
- rTMS (transcranial magnetic stimulation)“did TMS in april and may and suddenly started sleeping not enough, waking up multiple times in the night and up pretty early” In context ↗ Insomnia from treatment
Symptoms mentioned
Their words about their symptoms
- Sleep problems
i dream a lot and have very unrestful sleep
In context ↗ - POTS & dysautonomia
i know i have orthostatic hypotension
In context ↗ - Heart symptoms & palpitations
i’ve had issues in the past where my heartbeat is forceful and i can feel it too much
In context ↗ - Anxiety & low mood
been on zoloft for about a decade for ocd/depression/anxiety
In context ↗