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Long COVID Near normalIll 9 months before improving or writing

Long COVID for nine months, now nearly back to normal with a ketogenic diet

Condition
Long COVID
At worst
Not stated
Ill before improving or writing
9 months
Last post
Jun 2022
In their words
  • Condition: Long COVIDAt the start of the pandemic I had long covid for 9 months, I’m now positive again. In context ↗
  • Now: Near normalThis all lasted for about a year and I’d say I’m 90% better, I’ve been 90% for a year now. In context ↗
  • Began after: COVIDAt the start of the pandemic I had long covid for 9 months In context ↗
Read from 5 of their posts and comments; links to the 5 this page draws on

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Summary

Horizon 71297 had long COVID from the start of the pandemic, with symptoms that lasted about nine months and left them 90% better for a year. They credited a very low-sugar/carb or ketogenic diet with helping recovery. They reported lifelong POTS and said they were sure they had MCAS and EDS. A COVID reinfection in March 2022 caused three days of heavy flu-like symptoms, after which they felt much better but tired.

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What they tried

Also tried

sleeping with upper body slightly raised· Helpedcounselling· Helped
Their words about each treatment
  • really low sugar/carb diet, keto · HelpedSugar/carbs feed inflammation, and I really think this helped me recover In context ↗
  • sleeping with upper body slightly raised · HelpedSleeping with my upper body slightly raised helped a lot with this In context ↗
  • counselling · Helpedcounselling really helped me In context ↗

Approaches: Diet

Their path

Very severeSevereModerateMildNear normalRecovered12 mo15 mo18 mo21 mo2 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 12 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
At the start of the pandemicLong COVID onsetAt the start of the pandemic I had long covid for 9 months In context ↗Not stated
about a year into illnessRecovered to 90% betterI’d say I’m 90% better, I’ve been 90% for a year now. In context ↗Near normal
2022-03-22COVID reinfection, day 2 symptomsI’m now positive again. In context ↗Mild
2022-03-26Recovered from reinfection, back to 90% better, tired3 days were a heavy flu for me but I’m much better now, pretty tired In context ↗Near normal

Symptoms mentioned

Their words about their symptoms
  • POTS & dysautonomiaI’ve had POTS my whole life. In context ↗
  • Mast cell (MCAS) & allergiesI’m 100% sure I have POTS, MCAS and EDS In context ↗
  • Heart symptoms & palpitationsSleeping with my upper body slightly raised helped a lot with this In context ↗
  • Headaches & migrainemy throat is bad, headache and feeling very tired and cold In context ↗
  • Flu-like symptoms3 days were a heavy flu for me In context ↗
  • Temperature regulationfeeling very tired and cold In context ↗
  • Gut problemseven my esophagus stopped working properly In context ↗

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