Miruvor
Sign up
Long COVID Moderate → relapsedIll 21 months before improving or writing

Long COVID: unable to work for six months, returned to work, then relapsed

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
21 months
Last post
Sep 2024
In their words
  • Condition: Long COVIDI often wonder how people who have LC like me do it in other countries without that safety net. In context ↗
  • At worst: ModerateDidn't work at all for 6 months. In context ↗
  • Now: RelapsedI managed for almost 4 months. But unfortunately a month ago I relapsed bad. ... Now it's like December 22 all over again. In context ↗
  • Began after: COVIDI fell ill December '22.
Read from 3 of their posts and comments; links to the 3 this page draws on

Request to remove this story

Summary

Fell ill with long COVID in December 2022 and could not work at all for six months. A gradual return to work reached four days a week by March 2024, but months later a relapse, blamed on work, divorce and raising a toddler alone, left them back where they started. Holidays ease their symptoms, though one trip ended in a hard relapse a week after returning. A medication they tried helped their anxiety, not physical symptoms, and disturbed sleep.

Ask Miruvor AI

Asking aboutSwan 12702’s story

What they tried

Also tried

Their words about each treatment
  • building up work days · Worsea month ago I relapsed bad. The combination of working, divorce from my wife, and raising a toddler by myself was too much. In context ↗
  • Escitalopram · Helpedhelps with the anxiety but not the physical issues In context ↗
  • trips/holidays · Helpedit's like a weight is lifted and my symptoms improve and often go away In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset6 mo12 mo18 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
December '22fell ill with long COVID and could not work at allI fell ill December '22. Didn't work at all for 6 months. In context ↗Moderate
mid-2023began building up work days, one at a timeThen I started building up days, one day a week, two, three... In context ↗Mild
March 2024back up to four days a week plus a parental leave dayUntil March of this year when I got up to 4 days a week and one day of parental leave. I managed for almost 4 months. In context ↗Mild
June 2024relapsed after working, divorce and raising a toddler alonea month ago I relapsed bad. The combination of working, divorce from my wife, and raising a toddler by myself was too much. In context ↗Moderate
2024-09-08still symptomatic; holidays ease symptoms, one trip ended in a hard relapsemy symptoms improve and often go away In context ↗Moderate

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseThe combination of working, divorce from my wife, and raising a toddler by myself was too much. My body said enough. In context ↗
  • Anxiety & low moodhelps with the anxiety but not the physical issues In context ↗
  • Sleep problemsAlso has had some weird effects on my sleep. The second week I woke up every night at 5am. In context ↗

Ask Miruvor AI

Asking aboutSwan 12702’s story

A little hope, every Sunday

New recovery stories and data-driven research on ME/CFS and long COVID. Ideas worth considering, and the evidence behind them.

Free · Unsubscribe anytime