ME/CFS
Outcome unclear
ME/CFS, weekly PEM from noise and sensory overload, hard to pace, now doing fine
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Nov 2024
In their words
- Condition: ME/CFS
aside from ME/CFS
In context ↗
Summary
A person with ME/CFS and AuDHD describes difficulty pacing and weekly PEM triggered by noise and sensory overload, including hearing traffic as draining. They had just come out of a PESE and flu by September 2024 and said they were doing fine and felt happy. No illness onset, duration, treatments or recovery are described, and their activity level is not stated.
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What they tried
Also tried
Their words about each treatment
- pacing · Not said
It does feel like it's hard to get better and it'll get worse ... So, pacing isn't enough
In context ↗ - muffler · Helped
Just hearing traffic is draining and using a muffler does help to some degree but I always find myself entering PEM by the end of the week
In context ↗ - linen spray or bed spray · Helped
I really like trying out linen spray or bed spray that smells good but relaxing. It really helps make resting enjoyable.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| 2024-09-01 | PESE and fluI just got out of PESE and fluIn context ↗ |
| 2024-09-01 | doing fine after PESE and fluI'm actually currently doing fineIn context ↗ |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I always find myself entering PEM by the end of the week.
In context ↗ - Light & noise sensitivity
Just hearing traffic is draining
In context ↗ - Flu-like symptoms
I just got out of PESE and flu
In context ↗