ME/CFS
No benefit
ME/CFS crash and horrific withdrawal, sunlight/UV followed by flu-like symptoms
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Oct 2026
In their words
- Condition: ME/CFS
Does sunlight/UV make you feel ill/have PEM afterwards?
In context ↗ - Now: No benefit
my chronic illness became way worse after getting off of it
In context ↗
Read from 8 of their posts and comments; links to the 8 this page draws on
Summary
A Reddit user with a chronic illness blamed a fast taper off benzodiazepines, used for about two months including the taper for panic attacks, for horrific withdrawal and a hard crash; the drug had helped while they took it. They said sunlight/UV made them feel flu-like afterward and a PPI worsened their gut; in October 2026 they were still asking whether sunlight/UV caused PEM.
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What they tried
Their words about each treatment
- benzos · Helped a lot
I took benzos, for about 2 months including the taper, had horrific withdrawal which i think worsened my condition.
In context ↗ - ppi · Worse
I made thr mistake of using a ppi, ruined my gut microbiome even more.
In context ↗ - stopping all activity · Worse
Yes! Stopping all activity has been wrecking me.
In context ↗ - sunlight exposure · Worse
I’m trying to boos my sunlight exposure but feel like I have the flu every time afterwards
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 1 month after onset: the story doesn’t say how ill they were before that. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2026-09-23 | crashed from mild to fully bedbound, blamed on a fast benzo taperI’m now certain one of the reasons i’m crashing so hard now is precisely because of my benzo withdrawal (I did a fast reduction). I crashed HARDIn context ↗ | Severe |
| 2026-10-10 | still crashing; sunlight leaves them feeling flu-likeI’m trying to boos my sunlight exposure but feel like I have the flu every time afterwardsIn context ↗ | Severe |
Adverse events
- Benzodiazepines (unspecified)“I took benzos, for about 2 months including the taper, had horrific withdrawal which i think worsened my condition.” In context ↗ Withdrawal problems
- Benzodiazepines (unspecified)“Same here I think my benzo withdrawals really really made things worse” In context ↗ Made symptoms worse
- Benzodiazepines (unspecified)“But the damage was already done during the massive taper i did. My body went absolute nuts, I thought I was dying” In context ↗ Withdrawal problems
- Benzodiazepines (unspecified)“It truly saved me from the panic attacks I was getting but my chronic illness became way worse after getting off of it” In context ↗ Made symptoms worse
- Proton pump inhibitors (unspecified)“I made thr mistake of using a ppi, ruined my gut microbiome even more.” In context ↗ Gut side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
feel like I have the flu every time afterwards
In context ↗ - Gut problems
I made thr mistake of using a ppi, ruined my gut microbiome even more
In context ↗