ME/CFS
No benefitIll for 2 years
Exhausted by ME/CFS a year and a half in, no better after rest or vaccines
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- 2 years
- Last post
- Jun 2022
In their words
- Condition: ME/CFS
I’m only a year and a half in ... my normal exhaustion levels
- Now: No benefit
it did not fix me
In context ↗
Read from 7 of their posts and comments; links to the 6 this page draws on
Summary
Kestrel 27751 was about a year and a half into ME/CFS in late 2021, exhausted, and after a full year of rest said it did not fix them, though it may have kept them from getting worse. Two Moderna shots left their illness unchanged, with temporary sore arm, rash, fever and body aches. They quit coffee for three months with no difference and later lost 35 lb through diet alone.
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What they tried
Also tried
Their words about each treatment
- quitting coffee · No change
I quit coffee for 3 months literally just to see if it would help, but no difference for me.
In context ↗ - aggressive resting · No change
Just hit a year or doing this and I can confidently say it did not fix me. What I cannot say for sure is whether or not it kept me from getting worse.
In context ↗ - Propranolol · Helped
I’m currently on Propranolol for an essential tremor (that started with all this other mess), and it works perfectly for the tremor. Happy accident, it also lowered my high BP
In context ↗ - other BP med · Not said
I was able to stop my other BP med even though the other was supposedly stronger and more capable than my low dose propranolol
In context ↗ - Moderna vaccine · No change
I got Moderna and ultimately felt the same. Not worse, but not better… absolutely the same.
In context ↗ - calorie-restricted diet · Helped
I dropped 35lb over the course of a year with the same activity levels you described here. I ate around 1600-1800 calories a day, focusing mostly on lower sodium and plenty of water.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2020 | onset of ME/CFSI’m only a year and a half in, so I don’t have too much wisdom to share yet.In context ↗ | Moderate |
| 2021-09-01 | a year of aggressive rest brought no improvement; still exhaustedJust hit a year or doing this and I can confidently say it did not fix me ... I’m still utterly exhausted | Moderate |
Adverse events
- COVID vaccination as treatment“first shot I did get a sore arm and the rash at injection site, but it only lasted a couple of days. Second shot I got a small fever for a day, body aches and slept the whole day.” In context ↗ Side effects