Long COVID
Mild → somewhat betterIll 3 years before improving or writing
Long COVID for almost three years with repeated relapses, now somewhat better
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 3 years
- Last post
- Mar 2025
In their words
- Condition: Long COVID
have had long covid for almost 3 years
In context ↗ - At worst: Mild
I’m only working half days.
In context ↗ - Now: Somewhat better
I was better this summer than last summer so something has improved.
In context ↗ - Began after: COVID
have had long covid for almost 3 years
In context ↗
Read from 5 of their posts and comments; links to the 5 this page draws on
Summary
Hare 81148 had long COVID for almost three years, with repeated relapses after slight improvement. By late 2024 they were better than the previous summer but crashed from work stress and winter, and were teaching only half days. A strict low-carb, low-histamine diet was not helping but was hoped to pause the crash; a month without carbs cleared a klebsiella overgrowth, though other gut overgrowths remained.
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What they tried
Also tried
Their words about each treatment
- Vitamin D · Worse
Vitamin D made me feel so charged and anxiety went crazy.
In context ↗ - B vitamins · Worse
Vitamin D made me feel so charged and anxiety went crazy. B vitamins too!
In context ↗ - allicin · Worse
I am also on a protocol to heal my gut - allicin, prebiotics, pom peel and some probiotics and feel awful. I’m about 6 weeks in and actually feel the worse I’ve felt in a long time.
In context ↗ - low carb, no nightshade diet · No change
Back on a very strict low carb, low histamine, no nightshade diet. It’s not helping but it’s pausing the crash hopefully.
In context ↗ - dehumidifiers and an air purifier · Not said
I’ve bought dehumidifiers and an air purifier to see if I can make my home less inviting to dust mites and mould.
In context ↗ - no carbs for a month · Helped
I had an over growth of klebsiella and went no carbs for a month. Only ate meat and veg and some fruit. It was hard but got rid of it and now eating carbs again and it’s not come back.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 2.9 years after onset: the story doesn’t say how ill they were before that. 3 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2021/2022 | long COVID onsethave had long covid for almost 3 yearsIn context ↗ | Not stated |
| 2023-06-18 | relapsing after slight improvementI’m 18 months in and on the merry go round of thinking I’m getting slightly better only to relapse.In context ↗ | Not stated |
| 2023-09-20 | felt worst in a long time on gut protocolI’m about 6 weeks in and actually feel the worse I’ve felt in a long time.In context ↗ | Not stated |
| 2024-11-03 | better than previous summerI was better this summer than last summer so something has improved.In context ↗ | Mild |
| 2024-11-03 | crash from work stress and winter; teaching half daysI am in a crash right now from stress at work and also going into winter.In context ↗ | Mild |
Adverse events
- Vitamin D and sun exposure“Vitamin D made me feel so charged and anxiety went crazy.” In context ↗ Mood or psychiatric effects
- Vitamin B complex“Vitamin D made me feel so charged and anxiety went crazy. B vitamins too!” In context ↗ Mood or psychiatric effects
- Garlic and garlic extract, Prebiotics, Probiotics and fermented foods“I am also on a protocol to heal my gut - allicin, prebiotics, pom peel and some probiotics and feel awful. I’m about 6 weeks in and actually feel the worse I’ve felt in a long time.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I am in a crash right now from stress at work
In context ↗ - Temperature regulation
I’m worse in winter.
In context ↗ - Anxiety & low mood
Vitamin D made me feel so charged and anxiety went crazy.
In context ↗ - Gut problems
still working on other overgrowths mainly bilophila so not yet there with my gut.
In context ↗