ME/CFS after COVID setback; Modafinil and Chilipad helped, then relapse
- Condition
- ME/CFS
- At worst
- Not stated
- Ill before improving or writing
- Not stated
- Last post
- Sep 2026
In their words
- Condition: ME/CFS
Rocky mountain spotted fever and West Nile for me.
In context ↗ - Now: Relapsed
I almost thought I was free of it but COVID has set me back.
In context ↗ - Began after: a bacterial or tick-borne infection
Rocky mountain spotted fever and West Nile for me.
In context ↗
Read from 6 of their posts and comments; links to the 4 this page draws on
Summary
Swan 90325 dates their symptoms to Rocky Mountain spotted fever and West Nile, and says COVID set them back. They report Modafinil really helped, a Chilipad bed chiller helped a lot and made sheets feel fresh longer, and the Novavax vaccine caused no massive crash. How limited they are is not described.
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What they tried
What they credit
Also tried
Their words about each treatment
- Chilipad bed chiller · Helped a lot
Getting a bed chiller like the Chilipad has helped me tremendously.
In context ↗ - Modafinil · Helped
Modafinil really helped me.
In context ↗ - Novavax · Not said
Novavax was the easiest COVID vaccine I've taken and I had no massive crash.
In context ↗
Approaches: Stimulants
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| onset | ME/CFS began after Rocky Mountain spotted fever and West NileRocky mountain spotted fever and West Nile for me.In context ↗ |
| before July 2024 | COVID set them back after they thought they were free of itI almost thought I was free of it but COVID has set me back.In context ↗ |
| 2024-10-04 | Took Novavax with no massive crash; reports Modafinil helpedNovavax was the easiest COVID vaccine I've taken and I had no massive crash.In context ↗ |
Symptoms mentioned
Their words about their symptoms
- Temperature regulation
I didn't realize how much I sweat at night until I got one
In context ↗
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